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Foundation Fighting Blindness and Usher 1F Collaborative to Launch Natural History Study


Foundation Fighting Blindness and Usher 1F Collaborative to Launch Natural History Study
The project will help identify outcome measures for future clinical trials of potential USH1F therapies.
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COLUMBIA, Md., April 29, 2021 /PRNewswire/  
Foundation Fighting Blindness, the world s leading organization committed to finding treatments and cures for blinding retinal diseases, is partnering with the Usher 1F Collaborative, a family-founded nonprofit driving research for Usher syndrome type 1F (USH1F), to launch a natural history study, the Rate of Progression in
PCDH15-Related Retinal Degeneration in Usher Syndrome 1F (RUSH1F). Additional funding for the project will be provided by the Marjorie C. Adams Trust. ....

United States , Melissa Chaikof , Katarina Stingl , Erica Miller , Todd Durham , Chris Adams , Jaeb Center , Marketing Communications , Marjoriec Adams , Health Research In Tampa , Foundation Fighting Blindness , Fighting Blindness , Related Retinal Degeneration , Usher Syndrome , Health Research , Foundation Fighting , ஒன்றுபட்டது மாநிலங்களில் , எரிகா மில்லர் , டாட் டர்ஹாம் , கிறிஸ் ஆடம்ஸ் , சந்தைப்படுத்தல் தகவல்தொடர்புகள் , ஆரோக்கியம் ஆராய்ச்சி இல் தம்பா , அடித்தளம் சண்டை குருட்டுத்தன்மை , சண்டை குருட்டுத்தன்மை , அஶர் நோய்க்குறி , ஆரோக்கியம் ஆராய்ச்சி ,

A Leitrim's man Journey into Dusk


A Leitrim s man Journey into Dusk
Des Keaney was born and raised in Manorhamilton, but spent his working life in and around Dublin. He returned to live on the Barr Road in Rossinver but soon began losing his sight. This is his story.
Des sitting with Paige overlooking Lough Melvin
Reporter:
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He was too polite to ask. I could sense that a friend I hadn’t spoken to in a long time was interested in what my eyes could see. So this is my story.
Everyone whose eyes stop working has a different story. Some have no light perception at all. Some can only dimly perceive light and shade. Some have ‘tunnel’ vision where a little central vision remains but the peripheral is gone. ....

Vancouver Island , British Columbia , National Council For The Blind , Late Onset Retinal , National Council , Fighting Blindness , Irish Guide Dogs , Girish Guide , வான்கூவர் தீவு , பிரிட்டிஷ் கொலம்பியா , தேசிய சபை க்கு தி குருட்டு , தேசிய சபை , சண்டை குருட்டுத்தன்மை , ஐரிஷ் வழிகாட்டி நாய்கள் , ஐரிஷ் வழிகாட்டி ,

Foundation Fighting Blindness Appoints Claire M. Gelfman, Ph.D. as Chief Scientific Officer


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COLUMBIA, Md., April 27, 2021 /PRNewswire/  
Foundation Fighting Blindness, the world s leading organization committed to finding treatments and cures for blinding retinal diseases, announces that it has appointed Claire M. Gelfman, Ph.D. as chief scientific officer. In her new role, Dr. Gelfman will be responsible for leading the overarching scientific strategy for the organization with a focus on research initiatives designed to accelerate new treatments and cures for inherited retinal diseases.
Additionally, Dr. Gelfman will oversee the Foundation s non-clinical research portfolio, including early translational and pre-clinical research programs. She will also serve as the primary scientific contact with the Foundation s Scientific Advisory Board, the Research Oversight Committee, academic institutions, and government science agencies. ....

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Grover: Canadians shouldn't wait longer than others for new drugs


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One hard lesson Canadians and their governments have learned during this pandemic is how difficult it is to wait to get a new therapy that can save your life. Unfortunately, this is a lesson far too many Canadian patients learned long ago.
Canada badly lags other countries in COVID-19 vaccination, including other G7 countries except Japan. The federal government, newly awakened to the problem of delayed access to vaccine, has launched an admirable effort to shorten the wait for Canadians. It has aggressively pursued vaccine supply contracts with multiple companies, negotiated faster delivery where possible, and begun discussions with drug companies about producing new vaccines here in Canada. ....

Kelly Grover , Lung Health Foundation , Breast Cancer Foundation , Canadian Hospice Palliative Care Association , Society Of Canada , Prostate Cancer , Postmedia Network , Canadian Association , Leukemia Lymphoma Society Of Canada , Canadian Cancer Survivor Network , Coalition Priorit , Yet Ottawa , Cystic Fibrosis , Canadian Cancer Survivor , Canadian Hospice Palliative Care , Colorectal Cancer , Fighting Blindness , Lymphoma Society , Lung Health , Ovarian Cancer , Force Against Prostate , Breast Cancer , கெல்லி தோப்பு , நுரையீரல் ஆரோக்கியம் அடித்தளம் , மார்பக புற்றுநோய் அடித்தளம் , கனடியன் விருந்தோம்பல் நோய்த்தடுப்பு பராமரிப்பு சங்கம் ,