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Register for Online FSHD Masterclass August 12

Register for Online FSHD Masterclass August 12
The FSHD Society is offering its first-ever CME-accredited masterclass on facioscapulohumeral muscular dystrophy (FSHD). This course, which will be held virtually on August 12, is of interest to any physician and allied health professional who sees adult and pediatric neuromuscular patients with undiagnosed FSHD.
The half-day course will cover diagnosis and management in adult and pediatric patients; updates on genetic and epigenetic testing; and molecular pathophysiology, current treatment strategies, and clinical trials. Attendees can earn up to 4.25 continuing medical education (CME) credits.
Although FSHD is one of the most common forms of muscular dystrophy, it is often under-diagnosed, and diagnosed patients don’t always benefit from the existing standards of care. ....

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FSHD Society offers CME-accredited masterclass on FSH muscular dystrophy

FSHD Society offers CME-accredited masterclass on FSH muscular dystrophy
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Jacinda Sampson , Doris Leung , Kiera Berggren , Kent Drescher , Katy Eichinger , Kathy Mathews , Rabi Tawil , Michelle Cao , Bassem Elhassan , June Kinoshita , Jeffrey Statland , Johns Hopkins University , University Of Kansas , Accreditation Council For Continuing Medical Education , University Of Iowa , Virginia Commonwealth University , Fshd Society , University Of Rochester , Peerpoint Medical Education Institute , Stanford University , Virginia Commonwealth , Johns Hopkins , Designation Statements , Disclosure Report , Accreditation Council , Continuing Medical Education ,

Mother of Four Kids Who Have a Rare, Incurable Disease Pens Surviving Myotonic Dystrophy, to Help Other Families Cope

Mother of Four Kids Who Have a Rare, Incurable Disease Pens Surviving Myotonic Dystrophy, to Help Other Families Cope
A progressive disease often missed, DM sufferers may seem apathetic or lazy
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SALT LAKE CITY, Jan. 12, 2021 /PRNewswire/ Having one child with a rare, incurable and often misunderstood genetic disease is tough enough but Ann S. Woodbury has four children and a husband with myotonic dystrophy (Dystrophia Myotonica, DM), a disease that is characterized by progressive muscle wasting and weakness. Ever since their diagnosis in 1998, Woodbury has been advocating for families like hers and educating physicians about the symptoms that can vary from individual to individual and affect multiple organs. ....

United States , University Of Utah , Anns Woodbury , Diane Dunn , Dystrophia Myotonica , Benjamin Gallais , Jacinda Sampson , Maria Gurrister , Language Center , Surviving Myotonic Dystrophy , Surviving Myotonic , Wasatch Speech , Myotonic Dystrophy , Survivingmyotonic Dystrophy , ஒன்றுபட்டது மாநிலங்களில் , பல்கலைக்கழகம் ஆஃப் உட்டா , அண்ணல் வூட்பரி , டயான் டன் , ஜசிந்தா ஸ்யாஂப்ஸந் , மொழி மையம் , பிழைத்து மியொடாநிக் டிஸ்ட்ரோபி , பிழைத்து மியொடாநிக் , வசட்ச் பேச்சு , மியொடாநிக் டிஸ்ட்ரோபி ,