தேசிய ரேர் நோய் கட்டமைப்பு News Today : Breaking News, Live Updates & Top Stories | Vimarsana

 
In order to create #RareAwareness around the challenges that people living with a rare disease and their families face everyday, RDSA has likened the ‘new norm’ to ‘living rare’.
Kelly Du Plessis, CEO and founder of RDSA explains, “In light of the current global pandemic, ordinary citizens have experienced the reality of those living with rare diseases and other life-threatening diseases. Rare disease patients are immuno compromised citizens and their movement is usually limited from the time they receive diagnoses. For many, their early childhood marks the beginning of living with a heightened awareness about their surroundings and health.”
 
She continues, “For rare disease patients, avoiding crowds for long periods, touching surfaces that may expose them to germs, and constantly washing and sanitising their hands is standard.” ....

South Africa , South African , South Africans , Council Of National Alliances , National Rare Disease Framework , Rare Disease Day , Rare Diseases South Africa , Share Your Rare , National Alliances , Disease Day , சபை ஆஃப் தேசிய கூட்டணிகள் , தேசிய ரேர் நோய் கட்டமைப்பு , ரேர் நோய் நாள் , பகிர் உங்கள் ரேர் , தேசிய கூட்டணிகள் , நோய் நாள் ,