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Rare Disease Day 2021: Quotes And Greetings To Commiserate With Those Suffering From It

Rare Disease Day 2021: Quotes And Greetings To Commiserate With Those Suffering From It
Rare is many. Rare is strong. Rare is proud.
In the month of February, which is known for having a rare number of days, the nation celebrates Rare Disease Day.
The main objective of celebrating this day is to raise awareness about the rare diseases and the impact it has on the lives of the patients. The target audience of this awareness day is the general public, public authorities, policymakers, researchers, health professionals and industry representatives.
On Feb. 29. 2008, EURORDIS and its Council of National Alliances launched Rare Disease Day. This day was chosen as it s a rare date that happens only once in four years. Since then, it has been celebrated on the last day of February. ....

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UK introduces Rare Diseases Framework to improve the lives of people with rare diseases

UK introduces Rare Diseases Framework to improve the lives of people with rare diseases
bluebird bio releases a video to raise awareness – Rare Disease Day 2021 is on 28 February
Earlier this year, the Department of Health and Social Care (DHSC) published the UK Rare Diseases Framework to promote positive change in the way people with rare diseases are diagnosed, care for and treated.
According to Rare Disease UK, one in 17 people will be affected by a rare disease at some point during their lifetime, with 3.5 million people in the UK and 30 million people across Europe living with a rare disease.
It can often take a long time for people living with a rare disease to get a diagnosis – on average, it takes over five years to receive an accurate diagnosis. ....

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Travere Therapeutics Recognizes Rare Disease Day 2021 and the Importance of Working Together to Innovate and Address Healthcare Disparities in Rare Disease

Travere Therapeutics Recognizes Rare Disease Day 2021 and the Importance of Working Together to Innovate and Address Healthcare Disparities in Rare Disease
globenewswire.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from globenewswire.com Daily Mail and Mail on Sunday newspapers.

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Rare Disease Day 2021 – The 'New Norm' Mirrors the Reality of Those Living with Rare Diseases – The Home Of Great South African News

In order to create #RareAwareness around the challenges that people living with a rare disease and their families face everyday, RDSA has likened the ‘new norm’ to ‘living rare’.
Kelly Du Plessis, CEO and founder of RDSA explains, “In light of the current global pandemic, ordinary citizens have experienced the reality of those living with rare diseases and other life-threatening diseases. Rare disease patients are immuno compromised citizens and their movement is usually limited from the time they receive diagnoses. For many, their early childhood marks the beginning of living with a heightened awareness about their surroundings and health.”

She continues, “For rare disease patients, avoiding crowds for long periods, touching surfaces that may expose them to germs, and constantly washing and sanitising their hands is standard.” ....

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