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New genomics workbook helps people use their family history to assess disease risks


New genomics workbook helps people use their family history to assess disease risks
Researchers at the National Human Genome Research Institute (NHGRI), part of the National Institutes of Health (NIH), have developed the Families Sharing Health Assessment and Risk Evaluation (SHARE) workbook, which helps people use their family history to assess their risk for heart disease, diabetes, breast cancer and colorectal cancer.
Since 2012, Laura Koehly, Ph.D., and her research team have measured the accessibility and usability of the workbook by working with communities and continually updating the workbook to address issues. Koehly is the chief of the Social and Behavioral Research Branch at NHGRI and senior author of the study. In a recent study in the journal ....

United States , Emily Henderson , Laura Koehly , Behavioral Research Branch , Public Health Genomics , National Institutes Of Health , National Human Genome Research Institute , Families Sharing Health Assessment , University Of Southern California , National Institutes , Risk Evaluation , African American , Kayla De La Haye , Southern California , ஒன்றுபட்டது மாநிலங்களில் , எமிலி ஹென்டர்சன் , நடத்தை ஆராய்ச்சி கிளை , பொது ஆரோக்கியம் மரபியல் , தேசிய நிறுவனங்கள் ஆஃப் ஆரோக்கியம் , தேசிய மனிதன் மரபணு ஆராய்ச்சி நிறுவனம் , பல்கலைக்கழகம் ஆஃப் தெற்கு கலிஃபோர்னியா , தேசிய நிறுவனங்கள் , ஆபத்து மதிப்பீடு , கயில டி லா ஹே , தெற்கு கலிஃபோர்னியா ,

NIH and Alaska Native leaders identify how to achieve socially responsible genomics research


NIH and Alaska Native leaders identify how to achieve socially responsible genomics research
SHARE:
A workshop led by Alaska Native people provides a path towards collaborative, community-driven genomics research.
In August 2020 the Centers for Disease Control and Prevention identified that Indigenous groups such as Alaska Native and American Indian people were at a higher risk for COVID-19. Researchers are still assessing the full impact of the disproportionate toll because of the limited representation of Indigenous peoples in numerous datasets and analyses used to make health policy decisions.
While issues of inclusion persist, Alaska Native people and the genomics community are engaging in more dialogue and trust-building. In recent years, tribal leaders and scientists have discussed the future of genomics research among Alaska Native people in multiple small sessions. ....

United States , Michael Hahn , Karen Caindec , Vence Bonham , Centers For Disease , Alaska Tribal Health System , Behavioral Research Branch , Southcentral Foundation Nuka , Us Research Program , Tribal Engagement Team , Prevention Arctic Investigations Program , Wellness Center , Southcentral Foundation Board Of Directors , Southcentral Foundation , Nuka Learning , Alaska Native , American Indian , Disease Control , Arctic Investigations , Alaska Tribal Health , Alaskan Native , Tribal Engagement Team Lead , ஒன்றுபட்டது மாநிலங்களில் , மைக்கேல் ஹான் , மையங்கள் க்கு நோய் , அலாஸ்கா பழங்குடி ஆரோக்கியம் அமைப்பு ,