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'We Have No Safety Net': Disability Rights Advocates Speak Out After Winter Storm


Listen • 4:32
Rolling power outages forced San Antonio resident Rafael Garcia, 25, to ration the power from his medical equipment during winter storms the week of February 15, 2021.
Like many Texans, Rafael Garcia couldn t sleep while his power was out last week.
He wasn t just cold. He was afraid he d stop breathing in the middle of the night.
“I had gone a full 24 hours without my breathing treatments, which keep my airwaves open. I remember thinking, ‘OK Ralph, you gotta keep breathing. You can’t have an asthma attack. You can’t panic.’”
The 25-year-old disability rights advocate from San Antonio has spinal muscular dystrophy. ....

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Texas snowstorm endangers people with chronic illnesses, disabilities


Hannah Giffin needed oxygen.
The 24-year-old who was recently diagnosed with four chronic illnesses relies on an oxygen concentrator to help her breathe, but when the power went out Tuesday in San Marco, Texas, she was forced to ration her oxygen.
It s been emotionally exhausting, she said. Not knowing if we’re going to have power to supply my ability to breathe is terrifying.
No emergency services could refill her oxygen tanks, and because her lung disease puts her at high risk for COVID-19 going to the hospital wasn t an option. Feeling isolated and hopeless, she and her mother, Kristin, turned to social media to try to get a generator or oxygen tanks from FEMA. ....

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Texas snowstorm, power outages are 'matter of life and death' for people with chronic illnesses, disabilities


They have chronic illnesses. Then, the power went out in Texas. It s been emotionally exhausting.
N dea Yancey-Bragg, USA TODAY
Texas mom describes three days without power with three kids, two dogs, husband
Replay Video
Hannah Giffin needed oxygen.
The 24-year-old who was recently diagnosed with four chronic illnesses relies on an oxygen concentrator to help her breathe, but when the power went out Tuesday in San Marco, Texas, she was forced to ration her oxygen.
It s been emotionally exhausting, she said. Not knowing if we’re going to have power to supply my ability to breathe is terrifying.
No emergency services could refill her oxygen tanks, and because her lung disease puts her at high risk for COVID-19 going to the hospital wasn t an option. Feeling isolated and hopeless, she and her mother, Kristin, turned to social media to try to get a generator or oxygen tanks from FEMA. ....

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