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How Mesothelioma Patients Cope with Having a Rare Disease
How Mesothelioma Patients Cope with Having a Rare Disease
We usually write about our experiences while caring for patients with malignant mesothelioma. As always I cannot remember when I left a patient and didn’t have a new respect for how patients with rare diseases like mesothelioma deal with the impact on their lives. Today I read an article about a woman who had been stripped of her job, hobbies, and her life as she knew it by a rare disease other than malignant mesothelioma. 
The unique perspective of rare diseases has always fascinated me – how do people learn to live with their new normal? Some people make it look easier than others as many adapt to their new way of life. A rare disease is defined as one that affects fewer than 200,000 people across a broad range of possible disorders. Mesothelioma is a rare disease that affects roughly 3,000 cases per year. In the United States there are over 7,000 ....

United States , National Organization For Rare Diseases , Mesothelioma Help Organization , National Organization , Mesothelioma Help , ஒன்றுபட்டது மாநிலங்களில் , தேசிய ஆர்கநைஸேஶந் க்கு ரேர் நோய்கள் , மீசோதெலியோமா உதவி ஆர்கநைஸேஶந் , தேசிய ஆர்கநைஸேஶந் , மீசோதெலியோமா உதவி ,