Page 57 - Depp News Today

Brady and mackenzie spent this past school year the way most kids do. going to class. hanging out with friends, looking forward to summer camp. but with one big difference. they did it while avoiding the sun. because sunlight exposure can cause a painful reaction in kids with epp, brady was still hoping for that experimental drug, the one that would darken his skin and make it more resistant to sunlight. do you think one day youll be able to get that medicine? >> yeah. >> and then brady and his ...

His 18th. >> its eight years and 14 days. >> sounds good. >> i let him do the countdown but i dont know whats going to happen. >> it lasts for two months. >> i hope it was really good for brady to see what can be for him. >> on the west coast of canada, shannon was also thinking about her childs future living with epp. shes sometimes concerned about mackenzies extreme shyness. she thinks her condition has a lot to do with that. >> it definitely made had harder for her to come out of her shell. >...

Called epp, 14-year-old mackenzie has to apply special sunblock before she walks out of her house. she wears uv resistant clothing and a hat since certain overhead lights can also cause a painful reaction in mackenzie. while she needs her face shield for prolonged sun exposure, her special hat has protected her every single day since she was 2. >> im the most embarrassed when we have to do the national anthem and im the only one with a hat on and i cant take it off and everybody stares and im li...

>> while children with epp do struggle, theres another disease out there thats more serious, more deadly. for this young girl named paris, every drop of sunlight that touches her skin is a matter of life and death. >>y think people understand the severity of it. not to get morbid, but i could potentially die. >> going out at night is the easiest way for paris to avoid the hot desert sun of st. george, utah. thats where her familys remarkable story begins, a journey with twists and turns that no ...

Like when you didnt know and you stayed out in the sun? >> yes. it was not pleasant. because i didnt know what was happening. >> neither did bradys mom, kristen. >> i was thinking what the heck is going on with my kid? you go to the e.r. with someone who is writhing in pain but theres nothing visible. >> thats the thing with epp. there are often no visible signs during or even after a reaction, which makes epp even harder to diagnose. >> and it was actually his pediatrician that had referred us ...

Like that. i remember feeling helpless for that seven months. >> mackenzie also cried more, slept less than her twin brother. but as these difficult months went on, shannon noticed a pattern. >> it actually gets worse when we take her outside. >> she told mackenzies doctor who then ran a special blood test and finally the doctor discovered the cause of mackenzies bewildering illness. the sun. >> i was terrified. you dont expect a doctor to tell you that your daughter is allergic to the sunlight....

Are undiagnosed or misdiagnosed. it can be life threatening. >> small percentage of patients will get liver failure, from the literature about 5% or so. >> long-term complications from epp are not entirely clear. one thing is. once a full-blown reaction to the sun starts, its extremely painful and can last for days. this video shows a young person with epp after too much sun. >> whats burning? >> shes in the bath trying to lessen her pain but its not happening. >> you cant just take a tylenol? >...

Whoever he fights and to make peace alongside them with whoever he makes peace with, to obey him in times of ease and in times of hardship, and that god is my witness. and thats it. >> reporter: osama bin laden was not yet the worlds most wanted man. phil mudd is a former depp testify director of the cia counterterrorism center. >> i think there is someone in the intelligence community who knew al qaeda was slowly emerging but i dont remember people looking at him and saying this guy is going to...

Depp attorney general rod rosenstein -- deputy attorney general rod rosenstein which describes the parameters of their investigation. the judge gave them two weeks to provide that memo or other evidence to explain why they have the authority to prosecute manafort. molly? molly: thank you very much. for more on all of this, lets bring in eliza collins, usa today congressional reporter. thanks for being here. >> thanks for having me. molly: lets take a look at the fascinating week, when it came ...

Fear that michael cohen may be indicted or charged? >> correct. the judge agreed with something that ive been saying, which is that it appears there are very serious charges on the horizon for michael cohen based on the evidence thats been presented thus far. and the court came to that conclusion and decided that the more prudent course of action was to delay the case 90 days. so, thats where that case stands. the case we have today, we just filed it, so the president will have to file a respons...