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February 27, 2018
Resignation, i think we all need to wait. >> youve been saying wait, dont pass judgment of the depp advertise that was waiting outside. certainly the officers that showed up were waiting i think many others were agast that the president claims he would run in without weapons when he had a chance to actually fight for this country and he chose. >> reporter: like a lot of people did to have five deferments on the day that he graduated from an ivy league school, the new york times reports that 40 a...
February 19, 2018
Meddling here. these indictments yes were not about collusion. but what the right has done and if you listen to them, they have gone out there and try to spin this and said rod rosenstein said no collusion at all. he was clear in these 13 indictments >> one of the things that the president tweeted is that started in 2014, before he was in politics, that is true. results of the election were not impacted. thats what the indictment said. thats what the depp attorney general said. -- deputy attorne...
February 18, 2018
A year ago about russian meddling here. these indictments yes were not about collusion. but what the right has done and if you listen to them, they have gone out there and try to spin this and said rod rosenstein said no collusion at all. he was clear in these 13 indictments >> one of the things that the president tweeted is that started in 2014, before he was in politics, that is true. results of the election were not impacted. thats what the indictment said. thats what the depp attorney genera...
February 3, 2018
But i dont know whats going to happen. >> it lasts for two months. >> i hope it was really good for brady to see what can be for him. >> on the west coast of canada, shannon was also thinking about her childs future living with epp. shes sometimes concerned about mackenzies extreme shyness. she thinks her condition has a lot to do with that. >> it definitely made had harder for her to come out of her shell. >> put our hands together and please welcome mackenzie. >> it was a big day at school whe...
February 3, 2018
>> do you remember what it was like when you didnt know and you stayed out in the sun? >> yes. it was not pleasant. because i didnt know what was happening. >> neither did bradys mom, kristen. >> i was thinking what the heck is going on with my kid? you go to the e.r. with someone who is writhing in pain but theres nothing visible. >> thats the thing with epp. there are often no visible signs during or even after a reaction, which makes epp even harder to diagnose. >> and it was actually his ped...
February 3, 2018
>> its his hope. i let him have that hope that some day he will get to lead a normal life without this struggle. >> while children with epp do struggle, theres another disease out there thats more serious, more deadly. for this young girl named paris, every drop of sunlight that touches her skin is a matter of life and death. >>y think people understand the severity of it. not to get morbid, but i could potentially die. >> going out at night is the easiest way for paris to avoid the hot desert s...
February 3, 2018
Looking forward to summer camp. but with one big difference. they did it while avoiding the sun. because sunlight exposure can cause a painful reaction in kids with epp, brady was still hoping for that experimental drug, the one that would darken his skin and make it more resistant to sunlight. do you think one day youll be able to get that medicine? >> yeah. >> and then brady and his mom heard some encouraging news. the drug was finally approved last fall. but in europe. >> it opens the door th...
December 2, 2017
>> you werent even prepared to cover her up in the car. >> no, not at all. my mom and dad in i in the elevator scrambling to cover her up, get her in the car and get her home. >> that was in 2002. after that, mckenzie would have to spend time in her room with her thick black curtains drawn. >> the worst experience is the guy calling me a vampire. its just like one of those things, you cant really do much about it. >> if the sunlight hits her skin for too long, she suffers extreme pain, itching a...
December 2, 2017
Approved by the fda, kristen is telling her son about the treatment since it went through a drug trial in 2005. how does it make you feel inside when you think about the possibility of having a drug that could help? >> makes me happy. >> in epps small community, bradys mom got to know a young man named andrew terrell who had the treatment for several months during that drug trial. he has been waiting for the drugs availability, too. >> i coached baseball that summer. i was outside all the time. ...
December 2, 2017
Struggle. >> while children with epp do struggle, theres another disease out there thats more serious, more deadly. for this young girl named paris, every drop of sunlight that touches her skin is a matter of life and death. >> i dont think people understand the severity of it. not to get morbid, but i could potentially die. >> going out at night is the easiest way for paris to avoid the hot desert sun of st. george, utah. thats where her familys remarkable story begins, a journey with twists an...