Saving Sarah News Today

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Ainsley: five years ago sarah was dying of cystic fibrosis while her mother janet was fighting outdated healthcare rules keeping sarah from a lung transplant that she so desperately needed for her life. fast forward to today, sarah is thriving as a happy and healthy teenager after winning her battle for that transplant. she and her mom are praising fox news for raising awareness and they are detailing their inspiring story in this brand new book it is called saving sarah. joininjoining me now wi...

And just helped us galvanize political support and public support it was through that and that campaign that we really were able to raise awareness about it and ultimately win in court. ainsley: sarah, have you such a bright future ahead because your mom fought hard for you. i watched that video of you holding her up on the treadmill and knowing within weeks she might not be here. how do you feel knowing that your mom fought for you and whats your message for america? >> i feel good knowing that...

Spread a rule about limiting access to adult donor lungs. >> im scared. >> reporter: on may 26th, "saving sarah" first airs on cnn sunday morning. shedding light on optn, and a little known policy, children under 12 must wait until all adult recipients pass on donor lungs to be even considered. by monday, may 27th, sarahs story hits the home page of other news outlets. and pressure from pennsylvanias forces health and human services secretary kathleen sebelius to step in. on may 31st, she asks o...

Responsibility to notify they were going to dem tlish building at 2136. apparently, that never happened. >> oh, lord. there will be issues with courtors. we will be discussing that at another time. don lemon, thank you for that reporting. interesting without question. sanction snooping. we just talked about it. the government is getting up in our business. a british newspaper reporting verizon is forced to hand over the phone records of millions of americans. thats you, your neighbors. every d...

Undue disadvantage and that is my child. so you know this notion that by letting sarah compete on the severity of her illness which is the spirit of unos law by treating the most serves fewer die. thats all were asking for them to put the spirit of their own law. they are putting someone at a disadvantage, thats my child. they are letting my child do i. >> we all know the law doesnt work at the pace that reality sometimes does. in that respect, what are you doing outside of counsel to try a appe...

Arbitrary, its my opinion, as an attorney, that it is discriminatory and it should give the secretary an ability to address the discriminatory nature in the way this policy has been put together. >> and again, i mentioned this to janet, before we went to break, whatever happens as the law shakes out, we dont have time on our side when it comes to little sarah. she may have weeks to live and thats it. i want to reiterate again for anybody watching, one more step. i will ask you, danny, if you don...

Other grownups on the list before getting an organ. heres the hard part to swallow. if there were no age restriction, sarah would be at the top of the list. joining me now is sarahs mother, janet. thanks for being with us. tell us how sarah is doing first off this morning. >> you know, were going up and down a little bit here. theyre watching her carbon dioxide real closely. itself the position we are in right now. shes stable. i would say stable on sort of the edge of a knife. >> your appeal ha...

Scan your mail. angelina jolie has made her first public appearance since her double mastectomy. last night she was at the premier of the new movie "world war z" her common law husband. she found out she kaer carries the mutation of the bcri 1 gene which stephen harperly increases her risk of getting ovarian and breast cancer. she says she feels great and is thankful to all those out there who have supported her. she looks terrific. justice on the run down, no. 1, saving sarah, struggling the qu...

Can supersede any law in terms of the order or age. if you make a direct donation to sarah, she can receive those lungs if they are a match and the doctors can determine. janet, this is a hard question to ask. i think it 81 scores how critical the situation is right now. is how long do the doctors at this point think that sarah has? >> they cant offer us any, you know, certaintys, but when we moved to the pediatric icu last week, they were told they were thinking in terps of weeks, not months --...