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Man fighting revamps foundation to cope with pandemic impact


Man fighting revamps foundation to cope with pandemic impact
Earle Kimel, Sarasota Herald-Tribune
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Associated Press member exchange story from the Sarasota Herald-Tribune.
LAKEWOOD RANCH, Fla. – To honor the birth of his daughter, Kevin Swan had the image of a watch tattooed on his left wrist – hands permanently frozen at 5:27 p.m., the exact time 2-year-old Elliott Monroe Swan came into the world on Feb. 21, 2018.
“It was my first Father’s Day present; it is set to the time Elliott was born,” Kevin, 39, said through an electronic voice that dictates sentences shortly after he finishes crafting them by gazing at specific letters on a tablet. ....

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Lakewood Ranch ALS survivor revamps foundation to cope with COVID-19


LAKEWOOD RANCH – To honor the birth of his daughter, Kevin Swan had the image of a watch tattooed on his left wrist – hands permanently frozen at 5:27 p.m., the exact time 2-year-old Elliott Monroe Swan came into the world on Feb. 21, 2018.
“It was my first Father’s Day present; it is set to the time Elliott was born,” Kevin, 39, said through an electronic voice that dictates sentences shortly after he finishes crafting them by gazing at specific letters on a tablet.
In February 2012, Kevin was diagnosed with amyotrophic lateral sclerosis. In the years since, the disease – which attacks the nerve cells in the brain and spinal cord – has robbed him of mobility and speech. He breathes with help from a ventilator, eats through a feeding tube and communicates through technology one eye movement at a time. ....

New York , United States , Southeast High School , United Kingdom , Sankt Peterburg , Johnny Cash , Steve Gleason , Chris Kennedy , Pat Quinn , Machu Picchu , Josh Graff , Peter Hurley , Jeanette Senerchia , Elliot Monroe Swan , Ruth Eckerd Hall , Rich Brooks , Kevin Swan , Pete Frates , Team Gleason , A Life Story Foundation , A Life Story Foundation Youtube , Boston College , Ringling College Of Art , Lakewood Ranch , Lou Gehrig , Life Story Foundation ,