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QUB Announces New £12m Rare Disease Research Centre | Northern Ireland News, 25/04/2024

LifeArc Centre Pools The Expertise Of Three UK Universities ....

United Kingdom , Northern Ireland , Catriona Crombie , Kerry Leeson Beevers , Ian Young , Dave Jones , Volker Straub , Tim Barrett , Amy Jayne Mcknight , Lifearc Centre For Rare Respiratory Diseases , Lifearc Centre For Rare Mitochondrial Diseases , Northern Ireland Rare Diseases Implementation Group , Care Research , School Of Medicine , Lifearc Centre For Rare Kidney Diseases , Biomedical Sciences At Queen , University Of Birmingham , Queen University Belfast , Department Of Health , Newcastle University , University Belfast , Lifearc Centre , Rare Disease Trials , Biomedical Sciences , Professor Dave Jones , Professor Tim Barrett ,

Ireland cross border network launches to bring hope to families affected by rare diseases

Ireland cross border network launches to bring hope to families affected by rare diseases
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United Kingdom , Colin Scott , Amy Jayne Mcknight , Leo Varadkar , Suja Somanadhan , Queen University Belfast , School Of Medicine , Ireland Rare Disease Interdisciplinary Research Network Rai , University College Dublin , Biomedical Sciences , Department Of The Taoiseach , Ireland Rare Diseases Interdisciplinary Research Network , Health Systems , School Of Nursing , Irish Research Council New Foundation , University Belfast , Taoiseach Leo Varadkar , Associate Professor Suja Somanadhan , Patient Involvement , Professor Amy Jayne Mcknight , Vice President , Shared Island , Irish Research Council , New Foundation , Patient Report Outcome Measures , Associate Prof Suja Somanadhan ,

New cross-border network aims to boost Ireland's rare disease research

The RAIN project aims improve the treatment and care options for patients with rare diseases through various collaborations across Ireland. ....

United Kingdom , Northern Ireland , Amy Jayne Mcknight , Leo Varadkar , Queen University Belfast , Rare Disease Interdisciplinary Research Network , Department Of The Taoiseach , University College Dublin , Irish Research Council New Foundation , University Belfast , Shared Island , Irish Research Council , New Foundation , Taoiseach Leo Varadkar , Amy Jayne ,

How Covid-19 rocked rare disease communities

People living with rare and complicated health conditions have experienced more challenges than most during the pandemic. However, emerging remote health services offer new opportunities  ....

United Kingdom , Brighton And Hove , Amanda Mortensen , Amy Jayne Mcknight , Lucy Mckay , Rick Thompson , Gemma Chandratillake , Tim Guillams , Queen University Belfast , British Society For Genetic Medicine , Department Of Health , Genomic Laboratory Hub , Batten Disease Family Association , British Society , Genetic Medicine , East Midlands , Unseen Seen , Rare Disease Empowerment , Rare Disease Europe , Professor Amy Jayne Mcknight , Jenny Rivers , Great Ormond Street Hospital , Social Care , United Kingdom Rare Disease Framework ,