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How Covid-19 rocked rare disease communities

Published: November 23, 2021

People living with rare and complicated health conditions have experienced more challenges than most during the pandemic. However, emerging remote health services offer new opportunities 

Source: raconteur.net

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United KingdomBrighton And HoveAmanda MortensenAmy Jayne McknightLucy MckayRick ThompsonGemma ChandratillakeTim GuillamsQueen University BelfastBritish Society For Genetic MedicineDepartment Of HealthGenomic Laboratory HubBatten Disease Family AssociationBritish SocietyGenetic MedicineEast MidlandsUnseen SeenRare Disease EmpowermentRare Disease EuropeProfessor Amy Jayne McknightJenny RiversGreat Ormond Street HospitalSocial CareUnited Kingdom Rare Disease Framework