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Johns Hopkins Researchers Call for Closing Gap in Collecting Racial and Ethnic Data

Johns Hopkins Researchers Call for Closing Gap in Collecting Racial and Ethnic Data
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Researchers identify substantial lack of racial and ethnic data in studies of rare genetic disorder

In a review of published research papers, investigators from the Johns Hopkins Medicine Hereditary Hemorrhagic Telangiectasia Center have identified a substantial lack of racial and ethnic data that may be negatively impacting the treatment and diagnosis of this rare disorder in diverse patients. ....

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