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Why patient-centricity is key for rare disease clinical research

Chiesi Global Rare Diseases Announces Publication of Results from Fabry Disease Patient Survey

Chiesi survey shows how Fabry drugs are failing patients

Chiesi survey shows how Fabry drugs are failing patients
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Lung disease raises heart risk: Study

A recent study conducted by researchers at the University of Birmingham has found that having a lung disease may increase the likelihood of developing heart conditions, irrespective of other risk factors like smoking or age.

Safeguarding emotional well-being through rare disease journeys

The Undiagnosed Diseases Network Foundation (UDNF) has successfully co-led a critical discussion on mental health at the 2024 Rare Disease Summit.

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