Why patient-centricity is key for rare disease clinical research
Adopting patient-centric approaches to help overcome the unique challenges related to clinical trials for rare diseases.
Source: europeanpharmaceuticalreview.com
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Chiesi Global Rare Diseases Announces Publication of Results from Fabry Disease Patient Survey
/PRNewswire/ -- Chiesi Global Rare Diseases, a business unit of the Chiesi Group established to deliver innovative therapies and solutions for people living...
Source: prnewswire.com
Lung disease raises heart risk: Study
A recent study conducted by researchers at the University of Birmingham has found that having a lung disease may increase the likelihood of developing heart conditions, irrespective of other risk factors like smoking or age.
Source: timesofoman.com
Safeguarding emotional well-being through rare disease journeys
The Undiagnosed Diseases Network Foundation (UDNF) has successfully co-led a critical discussion on mental health at the 2024 Rare Disease Summit.
Source: outsourcing-pharma.com
Lung Disease Raises Risk Of Heart Conditions Regardless Of Other Factors: Study
The researchers made the interesting finding using a trial involving patients with a rare genetic condition called Alpha-1 antitrypsin deficiency (AATD).
Source: medicaldaily.com