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Why patient-centricity is key for rare disease clinical research - Vimarsana News

Why patient-centricity is key for rare disease clinical research

Adopting patient-centric approaches to help overcome the unique challenges related to clinical trials for rare diseases.

Rare Disease Day: Bruce Bloom of Healx on technology & AI - Vimarsana News

Rare Disease Day: Bruce Bloom of Healx on technology & AI

Bruce Bloom, Chief Collaboration Officer at Healx, discusses Rare Disease Day, his work at Cures Within Reach & AI opening up the field of drug discovery

Easing the financial burden of rare disease drugs - Vimarsana News

Easing the financial burden of rare disease drugs

There are programmes available to help subsidise the cost of these often-costly medications.

Genea-Musings: Best of the Genea-Blogs - Week of 21 to 27 February 2021 - Vimarsana News

Genea-Musings: Best of the Genea-Blogs - Week of 21 to 27 February 2021

   Scores of genealogy and family history bloggers write thousands of posts every week about their research, their families, and their interests. I appreciate each one of them and their efforts. My criteria for "Best of ..." are pretty simple - I pick posts that advance knowledge about genealogy and family history, address current genealogy issues, provide personal family history, are funny or are poignant. I don't list posts destined for daily blog prompts or meme submissions (but I do include summaries of them), or my own posts. Here are my picks for great reads from the genealogy blogs...

Genea-Musings: 02/28/21 - Vimarsana News

Genea-Musings: 02/28/21

time for some more Genealogy Fun!! Here is your assignment, should you decide to accept it (you ARE reading this, so I assume that you really want to play along - cue the Mission Impossible music!):   2)  Put it in your own blog post, in a comment to this post, or in a Facebook post.  Please leave a link in a comment to this post. Here's mine: 1)  I chose today, 6 March, which reads: "March 6 — Describe an heirloom you may have inherited from a female ancestor (wedding ring or other jewelry, china, clothing, etc.). If you don’t have any, then write about a specific object you remembe...