Why patient-centricity is key for rare disease clinical research
Adopting patient-centric approaches to help overcome the unique challenges related to clinical trials for rare diseases.
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Adopting patient-centric approaches to help overcome the unique challenges related to clinical trials for rare diseases.
Bruce Bloom, Chief Collaboration Officer at Healx, discusses Rare Disease Day, his work at Cures Within Reach & AI opening up the field of drug discovery
There are programmes available to help subsidise the cost of these often-costly medications.
Scores of genealogy and family history bloggers write thousands of posts every week about their research, their families, and their interests. I appreciate each one of them and their efforts. My criteria for "Best of ..." are pretty simple - I pick posts that advance knowledge about genealogy and family history, address current genealogy issues, provide personal family history, are funny or are poignant. I don't list posts destined for daily blog prompts or meme submissions (but I do include summaries of them), or my own posts. Here are my picks for great reads from the genealogy blogs...
time for some more Genealogy Fun!! Here is your assignment, should you decide to accept it (you ARE reading this, so I assume that you really want to play along - cue the Mission Impossible music!): 2) Put it in your own blog post, in a comment to this post, or in a Facebook post. Please leave a link in a comment to this post. Here's mine: 1) I chose today, 6 March, which reads: "March 6 — Describe an heirloom you may have inherited from a female ancestor (wedding ring or other jewelry, china, clothing, etc.). If you don’t have any, then write about a specific object you remembe...