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"From a Single Voice to Diversity: Reframing 'Representation' in Patien" by Brett Scholz, Lucy Kirk et al.

There has been a growing emphasis on consumer representation in the development of health policy, services, research, and education. Existing literature has critiqued how discourses of representativeness can disempower consumers working in health systems. The context of the current study is consumer engagement in the development of COVID-19 triage policy and practice in a local health service. Consumer engagement has often been an afterthought in the COVID response, with few examples of consumers in agenda-setting or decision-making roles. In the Australian Capital Territory, 26 consumer, carer, and community groups worked together with academics and clinicians to develop these principles. Interviews were conducted with stakeholders (including consumers, clinicians, and other health professionals) to evaluate the development of triage principles. A discursive psychological approach to analysis was used to explore participants’ understandings about and constructions of consumers being ....

Australian Capital Territory , Consumer Involvement , Consumer Leadership , Consumer Representation , Lived Experience Leadership , Atient And Public Involvement , Service User Involvement ,

"Reimagining consumer involvement: Resilient system indicators in the C" by Patti Shih, Laila Hallam et al.

Background: Reflections on the response to the COVID-19 pandemic often evoke the concept of ‘resilience’ to describe the way health systems adjusted and adapted their functions to withstand the disturbance of a crisis, and in some cases, improve and transform in its wake. Drawing from this, this study focuses on the role of consumer representatives in healthcare services in initiating changes to the way they participated in the pandemic response in the state of New South Wales in Australia. Methods: In-depth interviews were conducted with two cohorts of consumer representatives. Cohort A included experienced and self-identified consumer leaders, who worked together in a COVID-19 Consumer Leaders Taskforce; Cohort B included participants outside of this group, and purposively included consumer representatives from rural and regional areas, and culturally and linguistically diverse communities. Results: The pause in consumer engagement to support health service decision-making in res ....

New South Wales , Leaders Taskforce , Public Contribution , Consumer Engagement , Consumer Participation , Consumer Partnership , Ovid 19 Pandemic , Health System Resilience , Atient And Public Involvement ,