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According to the Canadian Organization of Rare Diseases, about one in 12 Canadians – two-thirds of them children – are affected by a rare disorder, but right now, only 60 per cent of corresponding treatments are making it into Canada.
'I really think that it's important that Canadians become aware and expect more from our government,' says Bradford woman whose daughter has cystic fibrosis
The rare disease community has started a petition urging the government to come up with a Rare Disease Strategy that will allow patients easier access to life-saving treatments and medications
'This is something we’ve been fighting for the last two or three years'
'This is something we’ve been fighting for the last two or three years'