Rare Disease Day: March on Parliament Hill calls for feds to release funding
On the rarest of days, Feb. 29, organizers are marking and celebrating Rare Disease Day.
Source: ottawa.ctvnews.ca
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Rare diseases affect one in 12 Canadians - AirdrieCityView.com
Rare Disease Day is marked across Canada to help draw awareness of some of afflictions such as CF through the @IAmNumber12CA campaign.
Source: airdriecityview.com
BRAUN: CF advocate Madi Vanstone learning to live her best life
Madi Vanstone spent the first half of her young life trying not to die. These days she’s learning how to live life to the fullest.
Source: torontosun.com
Mother-daughter duo lobbying government for Rare Disease Strategy
'I really think that it's important that Canadians become aware and expect more from our government,' says Bradford woman whose daughter has cystic fibrosis
Source: barrietoday.com
Local mother-daughter duo lobbying government for Rare Disease Strategy
The rare disease community has started a petition urging the government to come up with a Rare Disease Strategy that will allow patients easier access to life-saving treatments and medications
Source: bradfordtoday.ca