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Rare Disease Clinical Trials: Site, Advocate and Technology Insights, Upcoming Webinar Hosted by Xtalks

Toronto, ON (PRWEB) August 31, 2022 Rare disease clinical trials are challenging on many levels, from identifying eligible patients, to making it ....

United Kingdom , Fabian Sandoval , Daniel Defabio , Andrea Valente , Emerson Clinical Research Institute , Community Engagement , Honeycomb Worldwide Inc , Technology Insights , Rare Disease Film Festival , Global Genes , Rare Disease Clinical Trials , Life Science , Press Release ,

Tell Your Story: Effie ParksRare Mom, Podcaster for Once Upon a Gene

Global Genes staff member Effie Parks shares her why - why she became involved in the rare community after her son was diagnosed with CTNNB1 syndrome. ....

Daniel Defabio , Community Engagement For Global Genes , Community Engagement Coordinator , Once Upon , Global Genes , Community Engagement , Patient Advocacy Summit ,

Tell Your Story: Daniel DeFabioRare Dad, Filmmaker, Advocate

Global Genes staff member Daniel DeFabio shares his why - why he became involved in the rare community after his son was diagnosed with Menkes disease. ....

New York , United States , Daniel Lucas Defabio , Daniel Defabio , Community Engagement For Global Genes , Menkes Foundation , American Cinematographer , For Daniel , Patient Advocacy Summit , Rare Disease Film , Rare Disease Film Festival , Global Genes , Community Engagement ,