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Rare diseases – raising awareness, listening to patients, making a difference

Rare diseases – raising awareness, listening to patients, making a difference
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Clinigen launches 'What is Possible?' campaign to accelerate access to medicines on Rare Disease Day

Clinigen launches ‘What is Possible?’ campaign to accelerate access to medicines on  Rare Disease Day  With over 7,000 rare diseases that impact over 300 million people globally, just 5% of rare diseases have a licensed treatment   LONDON, UK, 29 February 2024 – Clinig. ....

United Kingdom , City Of , Michelle Shearly , Carole Scrafton , Lorna Pender , Flutters Strutters Patient Advocacy Organisation , Early Access , Early Access Programs , Global Patient Engagement Lead , Strutters Patient Advocacy Organisation , Source Rare Revolution , Early Access Programmes , Expanded Access , Tali Kramer , Senior Director ,