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Emily Blackburn, 33, a mom of two from Tipp City, Ohio, has virally shared her family's deep secret about eight-year-old son Grayson's Batten disease diagnosis, hoping to garner financial support towards his treatment.
Grayson Naff, from Tipp City, was diagnosed with Batten disease last year - a group of rare genetic conditions that cause the brain to gradually shut down over five to ten years.
Batten disease affects about one in 25,000 babies and eventually sufferers lose the ability to speak, move, see and swallow, developing devastating dementia
An Ohio mom has revealed her 'heartbreak' after her eight-year-old son was diagnosed with a rare disease that will lead to childhood dementia. Grayson Naff was diagnosed with Batten disease last year - a group of rare genetic conditions that cause the brain to gradually shut down over five to ten years. His mother, Emily Blackburn, from Tipp City, said: 'This is what heartbreak is. The pain is beyond words. There are times I have trouble breathing through this nightmare.' Batten disease affects