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Heidi Sallee says sharing her daughter Emali Renee Sallee's story is difficult, but that if it saves another person's life, it's worth it.

KIF1A Associated Neurological Disorder is a rare severe neurodegenerative disease caused by mutations in the KIF1A gene, Amanda Burrett says. Only about 550 known families have been affected.

"When I joined the CIA, it's like you walk in the door and it shuts behind you and your friends basically can't know where you went. They can't know where you are. They certainly can't know what you do," Jonna Mendez tells Inside Edition Digital.

Kennedy Littledike required 21 surgeries to fix all of her injuries following the crash. She says the moment her father told her that her leg was gone was one of hardest she has ever experienced. “The room was so heavy,” she says.

Francesca Pauca attends Princeton University and is majoring in psychology. She will return home after graduating from the Ivy League school to help care for Victor. It’s a life path many wouldn’t consider, but that she says has always been the plan.