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'Sliding around in the dark': What it's like to have a rare disorder in New Zealand

Sliding around in the dark : What it s like to have a rare disorder in New Zealand
27 Feb, 2021 04:00 PM
9 minutes to read
Jaime and Aubrey Christmas, in November 2020. Photo / Supplied
Medical advice from Facebook, waiting years for a diagnosis, juggling dozens of specialists and even wishing it was cancer instead: these are the realities faced by the thousands of New Zealanders living with a rare disorder.
Some might be the only person in the country with their illness, but in total they amount to 300,000 Kiwis. It s comparable to the number with diabetes, but their pathway to care is much less certain. ....

New Zealand , United Kingdom , New Zealand General , New Zealanders , Liz Crigg , Lisa Foster , Mt Ruapeh , James Mcgoram , Lizzie Haldane , Aubrey Christmas , A Ministry Of Health , National Strategic Action Plan For Rare Diseases , International Rare Diseases , Nz Amyloidosis Patients Association , Would Mt Ruapeh , Patients Association , Chair Liz Crigg , National Strategic Action Plan , Rare Diseases , Rare Disease , Health Minister Andrew Little , Rare Disorders , Chair James Mcgoram , Medi Cal , புதியது ஜீலாந்து , ஒன்றுபட்டது கிஂக்டம் ,

Welcome To IANS Live - ENTERTAINMENT - Kangana claims she is the 'only' actress after Sridevi to try comedy

Photo Credit: IANS
IANSLive
Mumbai, Feb 25 (IANS) Kangana Ranaut has claimed that she is the only actress after late superstar Sridevi to have given comedy a shot. Her assertion came on Thursday, which marks 10 years of release of her hit romantic comedy, Tanu Weds Manu.
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© 2021 IANS India Private Limited. All Rights Reserved.
The reproduction of the story/photograph in any form will be liable for legal action.
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Update: 25-February-2021 ....

Kangana Ranaut , News Service , India Private , Tanu Weds , All Rights , செய்தி சேவை , இந்தியா ப்ரைவேட் , தனு திருமணங்கள் , அனைத்தும் உரிமைகள் ,

Vehicle Imports to be reviewed end of the year - CBSL clarifies conversion of export proceeds

Thursday, 25 February 2021 - 20:04
State Minister Ajith Nivard Cabraal states that a follow up and review will be carried out at the end of this year regarding the resumption of vehicle imports.
He stated this at a media briefing held at the Ministry of Finance today. Attygalle also commented.
Meanwhile CBSL stated the reasons for the Repatriation and Conversion of Export Proceeds stating why were these measures needed?
On 18 February 2021, the Monetary Board issued Rules in respect of repatriation of export proceeds into Sri Lanka and conversion of such proceeds into Sri Lanka rupees, and also issued Operating Instructions to Licensed Banks on the same. ....

Sri Lanka , Sri Lankan , Ajith Nivard Cabraal , Central Bank , State Minister Ajith Nivard Cabraal , Export Proceeds , Monetary Board , Operating Instructions , Licensed Banks , Sri Lanka Rupees , ஸ்ரீ லங்கா , ஸ்ரீ லங்கன் , மைய வங்கி , பண பலகை , இயங்குகிறது வழிமுறைகள் , உரிமம் பெற்றது வங்கிகள் , ஸ்ரீ லங்கா ரூபாய் , திருப்பி அனுப்புதல் , உரிமம் பெற்றது , கடன் வாங்கிய ,

Welcome To IANS Live - NATION - Chikkaballapur blast: How playing with fire cost the victims dear

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IANSLive
Chikkaballapur (Karnataka), Feb 24 (IANS) Playing with fire is an old adage and it seems to appropriately describe the accidental blast that took place in a quarry in Hirenagaveli near Gudibande in Karnataka s Chikkaballapur district on Tuesday.
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© 2021 IANS India Private Limited. All Rights Reserved.
The reproduction of the story/photograph in any form will be liable for legal action.
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Update: 24-February-2021 ....

Chikkaballapur Karnataka , Karnataka Chikkaballapur , News Service , India Private , All Rights , சிக்கபல்லாபூர் கர்நாடகா , கர்நாடகா சிக்கபல்லாபூர் , செய்தி சேவை , இந்தியா ப்ரைவேட் , அனைத்தும் உரிமைகள் ,

Welcome To IANS Live - LatestNews - Chikkaballapur blast: How playing with fire cost the victims dear

Photo Credit: IANS
IANSLive
Chikkaballapur (Karnataka), Feb 24 (IANS) Playing with fire is an old adage and it seems to appropriately describe the accidental blast that took place in a quarry in Hirenagaveli near Gudibande in Karnataka s Chikkaballapur district on Tuesday.
To get full access of the story, click here to subscribe to IANS News Service
© 2021 IANS India Private Limited. All Rights Reserved.
The reproduction of the story/photograph in any form will be liable for legal action.
For news, views and gossips, follow IANS at Twitter.
Update: 24-February-2021 ....

Chikkaballapur Karnataka , Karnataka Chikkaballapur , News Service , India Private , All Rights , சிக்கபல்லாபூர் கர்நாடகா , கர்நாடகா சிக்கபல்லாபூர் , செய்தி சேவை , இந்தியா ப்ரைவேட் , அனைத்தும் உரிமைகள் ,