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Centennial Park stage lit in gold tonight for DIPG awareness


Isabelle says the timing was right to get involved and spread awareness of the disease.
“The community is strongly behind us, we haven’t been forgotten,” said Isabelle. “The community has been very gentle and on our side. What we want to do is get involved, we believe that if we put more awareness to this horrible disease, there could more government funding for DIPG research.”
She added that tissue samples were given by Adaura to help with research efforts.
Fort St John Mayor Lori Ackerman says more awareness is needed for serious childhood illnesses.
“While the prognosis for a child diagnosed with DIPG is not good, what bothers me is it’s the same prognosis that would’ve been received 40 years ago and that is just wrong,” wrote Ackerman. “We have world-class researchers in our province and in our nation and we need to encourage them to do some research on this.” ....

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Local family supporting national ePetition to declare May 17 National DIPG Awareness Day


Author of the article: Keith Dempsey
Publishing date: May 17, 2021  •  3 hours ago  •  6 minute read  • 
A family from Walkerton who lost their nine-year-old niece and cousin Adaura Cayford (pictured here), from Fort St. John, British Columbia, to Diffuse Intrinsic Pontine Glioma (DIPG), a terminal brain tumor she was diagnosed with in August 2019, is supporting a national ePetition to declare May 17 National DIPG Awareness Day. The petition closes on Sept. 10.
Article content
A family from Walkerton who lost their nine-year-old niece and cousin Adaura Cayford, from Fort St. John, British Columbia, to Diffuse Intrinsic Pontine Glioma (DIPG), a terminal brain tumor she was diagnosed with in August 2019, is supporting a national ePetition to declare May 17 National DIPG Awareness Day. ....

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Parents of 4-year-old girl who died from rare brain cancer call for more awareness


 
TORONTO
Last December, just months after her fourth birthday, Isabelle Borkowski died after battling diffuse intrinsic pontine glioma (DIPG), a rare form of terminal brain cancer. Now, Isabelle s parents are working to raise more awareness about DIPG while honouring their daughter s memory.
We re hoping that bringing awareness to this disease will help eventually stimulate people in the government to provide additional funding for research, said Isabelle s father, Michal Borkowski, in an interview with CTV s Your Morning from Toronto.
The Borkowskis are circulating a House of Commons petition sponsored by Liberal MP Julie Dabrusin, calling on Parliament to declare May 17 as a national day for DIPG awareness. ....

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