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/PRNewswire/ -- The Barth Syndrome Foundation (BSF), the only patient advocacy organization dedicated to Barth syndrome and saving lives around the world...
KANAWHA COUNTY, WV (WOWK) - A group of students from Chicago is putting on their hard hats to make a difference in Kanawha County. "To see that we can...
NEW ORLEANS (press release) – For the second year in a row, the Glitter Box is partnering with the Music and Culture Coalition of New Orleans (MaCCNO) as part
Individuals with Barth Syndrome Chart New Path for the Review of Drugs Share Article Barth Syndrome Foundation’s recent listening session with FDA sheds light on one rare disease community’s acceptance of less certainty of treatment benefits Barth Syndrome Foundation Logo “Before Barth syndrome, to my knowledge, no patient community has specifically discussed the degree of uncertainty it would accept for potential new drugs. BOSTON (PRWEB) March 17, 2021 Barth Syndrome Foundation (BSF) shares initial reactions today to a h...