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Children's and teens roundup – the best new picture books and novels | Books - Vimarsana News

Children's and teens roundup – the best new picture books and novels | Books

How to care for a pet cloud; overcoming bullies; a powerful tale of Muslim identity; a YA sci‑fi thriller, and more

Millions have the same 'bendy body' disease as my daughter. Why isn't the medical profession paying more attention? - Vimarsana News

Millions have the same 'bendy body' disease as my daughter. Why isn't the medical profession paying more attention?

(CNN) — One day in July 2021, my then 15-year-old daughter Poppy stumbled and fell while walking down some stairs, grazing her knee. It wasn’t a serious wound, but over the weeks it didn’t heal. Around the same time, her wrists and knees became sore; her ankles started rolling when she walked; her hands began […]

What is Ehlers-Danlos syndrome, and why isn't more being done? - Vimarsana News

What is Ehlers-Danlos syndrome, and why isn't more being done?

One day in July 2021, my then 15-year-old daughter Poppy stumbled and fell while walking down some stairs, grazing her knee. It wasn't a serious wound, but over the weeks it didn't heal. I took Poppy to doctors who conducted tests, but they couldn't find out what was wrong with her. Then, in October, a breakthrough.

Source: ctvnews.ca
Chronic Illness Patient Advocates with New Book On 'Dealing with Disease' in Today's Healthcare System Where Doctors Can't Help - Vimarsana News

Chronic Illness Patient Advocates with New Book On 'Dealing with Disease' in Today's Healthcare System Where Doctors Can't Help

Richmond, VA (PRWEB) August 12, 2022 -- Christie Cox, a patient and advocate who suffers from hypermobile Ehlers Danlos syndrome (EDS), announced today the

Source: prweb.com
Aytu BioPharma, Inc.: Aytu BioPharma Adds Late-Stage Pediatric Onset Rare Disease Asset to Development Pipeline from Rumpus Therapeutics - Vimarsana News

Aytu BioPharma, Inc.: Aytu BioPharma Adds Late-Stage Pediatric Onset Rare Disease Asset to Development Pipeline from Rumpus Therapeutics

(0) Aytu gains global license to pivotal study-ready protein kinase C β isoform (PKCβ) inhibitor, AR101 (enzastaurin) in rare disease indications Program initially targeting vascular Ehlers-Danlos Syndrome (vEDS), a rare inherited connective tissue disorder resulting in high morbidity and a significantly shortened life span with no FDA-approved treatments Rumpus co-founders Christopher Brooke and Nathaniel Massari to join Aytu executive team with responsibility for AR101 program and development of pediatric onset rare disease pipeline Company to host conference call today at 4:30 PM ET ...