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(CNN) — One day in July 2021, my then 15-year-old daughter Poppy stumbled and fell while walking down some stairs, grazing her knee. It wasn’t a serious wound, but over the weeks it didn’t heal. Around the same time, her wrists and knees became sore; her ankles started rolling when she walked; her hands began […]
One day in July 2021, my then 15-year-old daughter Poppy stumbled and fell while walking down some stairs, grazing her knee. It wasn't a serious wound, but over the weeks it didn't heal. I took Poppy to doctors who conducted tests, but they couldn't find out what was wrong with her. Then, in October, a breakthrough.
A generation of young patient-researchers are advancing the science of Ehlers-Danlos syndrome, which they had to fight to get recognized.
Richmond, VA (PRWEB) August 12, 2022 -- Christie Cox, a patient and advocate who suffers from hypermobile Ehlers Danlos syndrome (EDS), announced today the
Bridging the divide between patient and doctor