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Horizon Therapeutics plc Announces 2023 RAREis Global Advocate Grant Recipients

Horizon Therapeutics plc Announces 2023 RAREis Global Advocate Grant Recipients
finanznachrichten.de - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from finanznachrichten.de Daily Mail and Mail on Sunday newspapers.

Nederlandse Leverpatienten Vereniging , Eimear Rigby , Associazione Italiana Sindrome , Distrofia Brasil , Matt Flesch , Rareis Instagram , Michelle Rivas , A Italia Famiglie , Beck Fahrner Syndrome Foundation , Rare Disease Ghana Initiative , Chordoma Foundation , Syndrome Foundation , International Gaucher Alliance , Erdheim Chester Disease Global Alliance , International Patient Organisation For Primary Immunodeficiencies , Cholestasis Network , Pa Foundation Inc , Jansen Syndrome Foundation , Hypertrophic Olivary Degeneration Association , Brazilian Association Of Prader Willi Syndrome , Healthcare Education Institute , Lennox Gastaut Syndrome Foundation , E We Foundation , Research Foundation , Indo Us Organization For Rare Diseases , Koolen Syndrome Foundation ,

Horizon Therapeutics plc Announces 2023 #RAREis Global Advocate Grant Recipients

Fifty patient advocacy organizations from around the world awarded a $5,000 grant to address unique challenges faced in rare disease communities

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Nederlandse Leverpatienten Vereniging , Matt Flesch , Distrofia Brasil , Associazione Italiana Sindrome , A Italia Famiglie , European Huntington Association , Northern Ireland Rare Disease Partnership , Glanzmann Research Foundation Inc , Philippine Society For Orphan Disorders Inc , Recurrent Respiratory Papillomatosis Foundation , Alliance For Pulmonary Hypertension , Bulgarian Society Of The Patients , Pediatric Epilepsy Surgery Alliance , Foundation For Sarcoidosis Research , Osteogenesis Imperfecta Foundation , Bones Inc , Rory Belle Foundation , Lennox Gastaut Syndrome Foundation , Healthcare Education Institute , Brazilian Association Of Prader Willi Syndrome , Indo Us Organization For Rare Diseases , Koolen Syndrome Foundation , Research Foundation , E We Foundation , Erdheim Chester Disease Global Alliance , International Patient Organisation For Primary Immunodeficiencies ,

One Mother's Story of Raising a Son with a Rare and Severe Form of Epilepsy

One Mother's Story of Raising a Son with a Rare and Severe Form of Epilepsy
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United States , New Jersey , David Mardi Gras , John Upledger , Daniel Coburn , David Dresser , University Of Colorado Anshutz Medical Campus , International Lennox Gastaut Awareness Day , University Of Colorado , University Of Colorado Anschutz Medical Campus , Holdinga Kiss , International Lennox Gastaut Syndrome Awareness Day , Lennox Gastaut Syndrome Foundation , Severe Form , Ellyn Kail , Lennox Gastaut Syndrome , Colorado Anshutz Medical Campus , Fulginiti Pavillion , International Lennox Gastaut Syndrome Awareness , Mardi Gras , Tibetan Buddhist , Rocky Mountains , International Lennox Gastaut Awareness , Guggenheim Fellow , Colorado Anschutz Medical Campus , Fulginiti Pavilion ,

FDA Approves UCB's Fintepla to Treat Seizures Associated with Lennox-Gastaut Syndrome

FDA Approves UCB's Fintepla to Treat Seizures Associated with Lennox-Gastaut Syndrome
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United States , Tracy Dixon Salazar , Mike Davis , Drug Administration , Lennox Gastaut Syndrome Foundation , Daily Staff , Fintepla Risk Evaluation , Mitigation Strategy , Clinical Global Impressions , Global Epilepsy ,

FINTEPLA® (fenfluramine) Oral Solution Now FDA Approved for Treatment of Seizures Associated with Lennox-Gastaut Syndrome (LGS)

FINTEPLA® has demonstrated efficacy in the most difficult-to-treat seizure types,1,2 including drop seizures, which cause a person to suddenly lose muscle. ....

United States , Bruxelles Capitale , Tracy Dixon Salazar , Mike Davis , Erica Puntel , Nick Francis , Minneap Minn , Antje Witte , Laurent Schots , American Epilepsy Society , Ucb Inc , Zogenix Inc , Program See Boxed Warning , Group Of Companies , Zogenix Press , Major Concerns , Guideline Development , Corporate Communications , European Medicines Agency , Lennox Gastaut Syndrome Foundation , Source Ucb Inc , Clinical Global Impressions , Global Epilepsy , Executive Director , Prescribing Information , Boxed Warning ,