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When a New Drug Is Costly, Not Approved and Possibly Life Changing
A trial cystic fibrosis treatment could offer a ‘new normal’ for people like Lilia Zaharieva. But they risk hopes dashed.
Emily Fagan is a Victoria-based freelance journalist passionate about reporting on social issues. You can find her work in Vice, the CBC and Ricochet, or follow her on Twitter @thatemfagan.
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The arrival of a new treatment for cystic fibrosis, Trikafta, is being lauded as a welcome development for people like Lilia Zaharieva. But access to the potentially life-saving drug may still be out of reach to many. ....

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