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Transcripts For MSNBCW Dateline 20240704

There was no fear of anything. I dont know if something snapped. I was shocked. I couldnt say anything. A doctor comes home but not for long. An hour later, she was back at the hospital she just left. She had this blank stare in her eyes. Three days later, she was dead. I said, she is my child and i gave birth to her and i want to know what happened to her. At first, it was just a medical mystery. For all intents and purposes she should be alive. It was out of this world. It made no sense. But soon, it became a Murder Mystery. Because once they discovered what killed her, the next question was who. If he couldnt have her, no one was going to have her. I still have it made sense of it. Welcome to dateline. The doctor was in the business of saving lives but the doctor became a patient one Out Of The Blue she collapsed and was rushed to the e. R. Now the seemingly
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Egyptian child with SMA receives most expensive medicine in world


CAIRO: Egyptian doctors have succeeded in treating a child with Spinal Muscular Atrophy (SMA) using the most expensive drug in the world, Zolgensma.
Nagia Ali Fahmy, professor of neurology and director of the Muscular and Neurology Unit at Ain Shams Medicine in Egypt, explained that Zolgensma, which has a value of $2.125 million per dose, is the first gene therapy of its kind in the world given to a patient intravenously in a single dose.
The drug was approved in May 2019 by the US Food and Drug Administration.
She added that the manufacturer, Novartis, offers 100 opportunities to obtain the drug free of charge in countries where it has not yet been registered, setting conditions for choosing the children who receive it, including that they should not be over two years old, and their mutation should be in the first gene. Accordingly, Ain Shams Medicine made eight applications for cases under their care, and Novartis selected one, a boy named Rayan from Alexandria, who ....

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