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Press Release – Rare Disorders NZ
The New Zealand Governments support of vulnerable people throughout the COVID-19 pandemic should be applauded – but more should be done to help the 6% of the population living with a rare disorder. To better support people with a rare health condition, …
The New Zealand Government’s support of vulnerable people throughout the COVID-19 pandemic should be applauded – but more should be done to help the 6% of the population living with a rare disorder.
“To better support people with a rare health condition, especially during a pandemic, there needs to be acknowledgment of the specific challenges they face as a collective group and a willingness to act,” says Rare Disorders NZ (RDNZ) Chief Executive Lisa Foster. “With clear recognition as a health priority, practical actions can be implemented for this vulnerable population.” ....

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Who Will Win The Coveted Rare Beer Crown?

Wednesday, 17 February 2021, 11:15 am
Unusual brews made with seafood, foraged botanicals and
barrel-aged ales are just some of the entries vying to win a
new city-wide beer competition.
Eleven
Wellington-based brewers will take part in the inaugural
Rare Beer Challenge next month to raise awareness of the
300,000 New Zealanders living with a rare disorder for Rare
Disease Day 2021.
“Inspired by the great work of
Rare Disorders NZ, Fortune Favours has challenged other
Wellington brewers to create their own unique brew to
showcase less common techniques and flavours,” says
Shannon Thorpe, founder of Fortune Favours brewery.
In
2020 Fortune Favours brewery and Rare Disorders NZ (RDNZ) ....

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Be Rare Aware And Support An Inclusive Health System For All New Zealanders

Be Rare Aware And Support An Inclusive Health System For All New Zealanders
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Wellington.scoop.co.nz » Local breweries competing for Rare Beer Crown

Wellington.scoop.co.nz » Local breweries competing for Rare Beer Crown
scoop.co.nz - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from scoop.co.nz Daily Mail and Mail on Sunday newspapers.

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