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'I was diagnosed with Parkinson's at 29, like Michael J Fox'

When I was first diagnosed ten years ago I was just 29, the same age as the Back to the Future star. The world was shocked when he revealed his news in 1998, admitting that he’d been diagnosed seven years earlier. Ironically, when I was 29, I was working as a web designer for the charity Parkinson’s UK. As an experiment, some of my colleagues were given bits of tech that simulated the condition including a glove that makes your hand shake and a corset that makes your chest seize up. Then there w

London , City-of , United-kingdom , Michaelj-fox , Lauren-shirreff , London-eye , Big-life-fix , More-human , Parkinsons-uk , Ichaelj-fox , Arkinsons-disease

Parkinson's UK award win for leading North Devon neuro-physiotherapist

"Power UP has been transformational and inspiring"

Suzanne-seymour , Helen-cooke , Royal-devon-university-healthcare , Parkinson-united-kingdom-excellence-network , United-kingdom-excellence-network , North-devon , Royal-devon , Inspiring , Physiotherapist , Royal-devon-university-healthcare-nhs-trust-foundation , Parkinsons-uk , Power-up

Irish-American with early-onset Parkinson's speaks about living with the condition at 42

York-based Irish-American Kimberly Campanello, 42, who was diagnosed with early-onset Parkinson’s in 2021, says not knowing “what the future holds&r...

United-states , Ireland , Irish , American , Kimberly-campanello , University-of-leeds , York-based-irish-american-kimberly-campanello , Moving-nowhere-here , Early-onset-parkinson-s , Health , Health-and-wellbeing , Interviews

National award for County Derry speech therapist

Karla O'Boyle has been helping those with Parkinson's.

Kilrea , Coleraine , United-kingdom , Northern-ireland , Craigavon , Armagh , Karla-oboyle , Lucy-elliott , Anne-donnelly , Rachael-dunwoody , Nicola-moore , Area-development

BBC News at Six-20210924-17:21:00

the actions that i show you. he is one of the first patients taking part in a clinical trial at kings college hospital, hoping to reduce or even stop the hallucinations. it's using a cannabis extract, cbd. if cbd were to be useful in treating parkinson's psychosis, it will really change the landscape of treatment for parkinson's psychosis. they will have longer lives, they will have happier lives. charles only takes this cbd for six weeks. it is the earliest part of the trial funded by parkinson's uk. next step is a larger, second stage. this research is very different to the wellness products so popular on the high street. they aren't medicines, but food supplements. it means they can't claim to treat illnesses, but also aren't tested so rigorously. charles' daughter kirstie has moved in to help take care of him, and is getting used to his hallucinations. one where i walked in and saw you in the middle of it.

Part , Patients , Hallucinations , Actions , Cannabis-extract , Kings-college-hospital , Clinical-trial , Cbd , One , Lives , Psychosis , Charles

BBC News-20210924-20:23:00

patients he's also developed psychosis. for him this comes as hallucinations often threatening or violent. ~ , ., �* . ,, , hallucinations often threatening or violent. ~ �* .~ , ., violent. when you're waking up from slee and violent. when you're waking up from sleep and you _ violent. when you're waking up from sleep and you find _ violent. when you're waking up from sleep and you find yourself- violent. when you're waking up from sleep and you find yourself in - violent. when you're waking up from sleep and you find yourself in a - sleep and you find yourself in a different environment. medicines normally used — different environment. medicines normally used to _ different environment. medicines normally used to treat _ different environment. medicines normally used to treat psychosisl different environment. medicines i normally used to treat psychosis can crash with parkinson's drugs so charles is trying something different. i charles is trying something different. ., charles is trying something different-— charles is trying something different. ., ~' ., different. i would like you to re eat different. i would like you to repeat the — different. i would like you to repeat the actions _ different. i would like you to repeat the actions they - different. i would like you to | repeat the actions they show different. i would like you to - repeat the actions they show you. he is repeat the actions they show you. hrs. is one repeat the actions they show you. is one of the repeat the actions they show you. he: is one of the first patient taking part in a clinical trial at queens couege part in a clinical trial at queens college hospital. hoping to reduce or even stop the hallucinations. it is using a cannabis extract, cb b. if cbv were to be useful in treating parkinson's— if cbv were to be useful in treating parkinson's it — if cbv were to be useful in treating parkinson's it could _ if cbv were to be useful in treating parkinson's it could change - if cbv were to be useful in treating parkinson's it could change the - parkinson's it could change the landscape _ parkinson's it could change the landscape of— parkinson's it could change the landscape of treatment. - parkinson's it could change the landscape of treatment. they i parkinson's it could change the . landscape of treatment. they will have longer — landscape of treatment. they will have longer lives _ landscape of treatment. they will have longer lives and _ landscape of treatment. they will have longer lives and happier- landscape of treatment. they will i have longer lives and happier lives. charles— have longer lives and happier lives. charles only — have longer lives and happier lives. charles only takes _ have longer lives and happier lives. charles only takes the _ have longer lives and happier lives. charles only takes the cbd - have longer lives and happier lives. charles only takes the cbd for - have longer lives and happier lives. charles only takes the cbd for six l charles only takes the cbd for six weeks. it's the earliest part of the trial funded weeks. it's the earliest part of the trialfunded by weeks. it's the earliest part of the trial funded by parkinson's weeks. it's the earliest part of the trialfunded by parkinson's uk. the next step is a larger and second

Patients , Hallucinations , Sleep , Violent , Psychosis , Something , Charles , Actions , Parkinson-s , Drugs , Environment , Repeat

BBC News-20210924-22:23:00

the actions that i show you. he's one of the first patients taking part in a clinical trial at kings college hospital, hoping to reduce or even stop the hallucinations. it's using a cannabis extract, cbd. if cbd were to be useful in treating parkinson's psychosis, it will really change the landscape of treatment for parkinson's psychosis. they will have longer lives, they will have happier lives. charles only takes this cbd for six weeks. it is the earliest part of the trial funded by parkinson's uk. next step is a larger, second stage. this research is very different to the wellness products so popular on the high street. they aren't medicines, but food supplements. it means they can't claim to treat illnesses, but also aren't tested so rigorously. charles' daughter kirstie has moved in to help take care of him, and is getting used to his hallucinations. one where i walked in and saw you in the middle of it.

Cannabis-extract , Part , Actions , Hallucinations , Patients , Clinical-trial , Cbd , Kings-college-hospital , One , Treatment , Trial , Charles

Parkinson's UK creates Vivifi Biotech to research 'promising' experimental treatment

Parkinson’s UK creates Vivifi Biotech to research ‘promising’ experimental treatment
24th February 2021
Charity organisation Parkinson’s UK has announced it is creating a dedicated company to drive forward research into an experimental treatment for Parkinson’s disease.
The company, Vivifi Biotech, has been created through the Parkinson’s Virtual Biotech – the drug development arm of Parkinson’s UK.
It will seek to further the development of Glial Cell-Line Derived Neurotrophic Factor (GDNF), and investigate if this naturally-occurring protein can regenerate dying brain cells in people with Parkinson’s and reverse their condition,
Previously, Parkinson’s UK funded a trial to investigate GDNF, which was led by MedGenesis Therapeutix.

Medgenesis-therapeutix , Arthur-roach , United-kingdom , Vivifi-biotech , Virtual-biotech , Glial-cell-line-derived-neurotrophic-factor , Disease-comprehensive-response , Parkinsons-uk , Parkinsons-disease , ஆர்தர்-ரோச் , ஒன்றுபட்டது-கிஂக்டம்