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Muscular Dystrophy Association Announces Seven Recipient

The Akari Foundation, All Wheels Up, Child Neurology Foundation, Cure CMD, Cure Rare Disease, Cure VCP Disease, and Christopher & Dana Reeve Foundation are.

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MedCity Pivot Podcast: Tackling Rare Disease With Someone Who Was Touched By It

Rich Horgan believes that there's an alternative path to drug development that can lower costs and the time it takes to bring drugs to market. He is trying to apply it to the field of rare and ultra-rare diseases.

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Price Chopper/Market 32 raises thousands to fight rare disease

Price Chopper/Market 32 raises thousands to fight rare disease
hudsonvalley360.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from hudsonvalley360.com Daily Mail and Mail on Sunday newspapers.

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Business Beat: Visions Federal Credit Union opens in Oneonta

Visions Federal Credit Union opens in Oneonta

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Researchers link death in gene-editing study to a virus used to deliver the treatment, not CRISPR – Metro US

The lone volunteer in a gene-editing study targeting a rare form of Duchenne muscular dystrophy likely died after having a reaction to the virus that delivered the therapy in his body, researchers concluded in an early study. Terry Horgan, 27, of Montour Falls, New York, died last year during one of the first tests of […]

New yorkUnited statesYale universityNew york universityMontour fallsTerry horganJesse gelsingerArthur caplanTerence flotteDrug administrationEducational media groupScience departmentYork universityHoward hughes medical institute scienceUniversity of massachusetts chan medical schoolNobel prize