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/PRNewswire/ -- The Progeria Research Foundation (PRF), the only nonprofit solely dedicated to finding treatments and the cure for Progeria, celebrates its...
The National Institute for Children’s Health Quality is set to receive one of Scott’s numerous donations, a $4 million gift.
Billionaire philanthropist MacKenzie Scott, who was previously married to Amazon founder Jeff Bezos, provided millions of dollars in funding to the National...
Sam Berns: The Progeria Research Foundation Sam Berns: The Progeria Research Foundation 416 Words2 Pages The Progeria Research Foundation was founded by Dr. Leslie gordon and Dr. Scott Berns who found out their son Sam Berns was diagnosed with Progeria just shy of his second birthday. It was then when these two doctors who never heard of the disease either, were informed and started doing research on behalf of their son, Sam. They quickly found out that the condition was so rare there was no where for the victims to go, no medical help, no place for parents of the children to console and no s...
Share Photo: (Photo : Unsplash/Kelly Sikkema) A mom whose son died of a rare disease finds the first treatment to help others who have the same condition. The medical doctor mom worked hard through the years and finally had the US Food and Drug Administration approve a drug to extend the life span of patients suffering from progeria. Did not know anything about the disease In 1998, Dr. Leslie Gordon's two-year-old son, Sam, got diagnosed with progeria. At that time, she did not know anything about it even as a medical doctor. During her stay in medical school, she had never encountered th...