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Mom Whose Son Died of Ultra-Rare Disease Finds First Treatment to Help Others Born with Same Disease


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Photo: (Photo : Unsplash/Kelly Sikkema)
A mom whose son died of a rare disease finds the first treatment to help others who have the same condition. The medical doctor mom worked hard through the years and finally had the US Food and Drug Administration approve a drug to extend the life span of patients suffering from progeria.
Did not know anything about the disease
In 1998, Dr. Leslie Gordon s two-year-old son, Sam, got diagnosed with progeria. At that time, she did not know anything about it even as a medical doctor. During her stay in medical school, she had never encountered the syndrome. ....

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