Unable to afford the medical treatment of his five-year-old son, who is suffering from a rare disease, Mohammad Fazal Yaseen Kidwai, a resident of Uttar Pradesh, has made a plea to Prime Minister Narendra Modi for financial assistance. PM Modi Receives Special Letter From Father of Child Suffering From Rare Disease Duchene Muscular Dystrophy, Appeals for Financial Assistance.
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A staggering Rs 17 crore for a single jab! That’s the cost of one Zolgensma injection used for children under two suffering from spinal muscular atrophy (SMA), the.
The gene therapy, one of the world’s most expensive drugs, offers promising results but experts caution that it is not a definitive solution for the rare nerve condition that leads to muscle wasting and weakness