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Team William: Embracing life with a rare disease

On Monday evenings, William Lyons breaks into his happy dance, swinging his arms and shouting, “Oh, yeah!” William knows the next day he’ll receive an infusion of what he calls “muscle juice.” It’s the medicine that prepares his 7-year-old body for another week of fishing, looking for crawdads and playing with his family’s pet turtles. ....

United States , Jane Emerson , William Lyons , Sheila Cormack , Lake Regional Health System In Osage Beach , Mu Health Care Women Hospital , Mu Health Care , Team William , Lake Regional Health System , Osage Beach , Adolescent Specialty Clinic ,

For Boy With Pompe Disease, Every Active Day Is a Gift

On Monday evenings, William Lyons breaks into his happy dance, swinging his arms and shouting, “Oh, yeah!” William knows the next day he’ll receive an infusion of what he calls “muscle juice.” It’s the medicine that prepares his 7-year-old body for another week of fishing, looking for crawdads and playing with his family’s pet turtles. ....

United States , Jane Emerson , William Lyons , Sheila Cormack , Lake Regional Health System In Osage Beach , Mu Health Care Women Hospital , Mu Health Care , Lake Regional Health System , Osage Beach , Adolescent Specialty Clinic ,