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Global Genes' RARE-X Names Winners to the Xcelerate RARE Open Science Data Challenge - Vimarsana News

Global Genes' RARE-X Names Winners to the Xcelerate RARE Open Science Data Challenge

Global Genes today announced the winners of its inaugural Xcelerate RARE Challenge Open Science Data Challenge at the RARE Advocacy Summit in San Diego. The Xcelerate RARE Challenge brought together academic and industry

Rare Disease Patient Advocates Gather in San Diego for a Week of Events to Connect, Learn, and Empower - Vimarsana News

Rare Disease Patient Advocates Gather in San Diego for a Week of Events to Connect, Learn, and Empower

Aliso Veijo, California (PRWEB) June 27, 2023 -- Members of the rare disease community from around the world will gather in San Diego in September for Global

Source: prweb.com
Global Genes announces partnership with CureJM Foundation to expand support in rare disease community for mental health related challenges - Vimarsana News

Global Genes announces partnership with CureJM Foundation to expand support in rare disease community for mental health related challenges

ALISO VIEJO, CALIF (PRWEB) May 11, 2023 -- The rare disease patient advocacy organization Global Genes has partnered with Cure JM Foundation to work together

Source: prweb.com
Building Equity Into Value Assessments Requires Changing the Rules of the Game - Vimarsana News

Building Equity Into Value Assessments Requires Changing the Rules of the Game

Equity has to be made front and center in conversations about value assessment, otherwise all stakeholders will continue waiting for someone else to make the first move, said one panelist at the Value-Based Insurance Design Summit.

Source: ajmc.com
Rare disease orgs Global Genes and RARE-X merge - Vimarsana News

Rare disease orgs Global Genes and RARE-X merge

RARE-X CEO Charlene Son Rigby will become CEO of the new combined company.