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Letter from Charlene Son Rigby, CEO to Kick Off 2024

Letter from Charlene Son Rigby, CEO to Kick Off 2024
globalgenes.org - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from globalgenes.org Daily Mail and Mail on Sunday newspapers.

Health equityCharlene son rigbyGlobal genes

RARE-X Launches Pompe Consortium To Support Patient-Owned Data Collection And Aggregated Data Sharing With Patient Community Biopharma And Research Collaborators

RARE-X Launches Pompe Consortium To Support Patient-Owned Data Collection And Aggregated Data Sharing With Patient Community Biopharma And Research Collaborators
datacollectiononline.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from datacollectiononline.com Daily Mail and Mail on Sunday newspapers.

Aliso viejoRyan colburnZealand pompe networkPompe allianceRykers foundationPompe warrior foundationDrug administrationPompe consortiumGlobal geneCharlene son rigbyGrants giantsNew zealand pompe networkGlobal genes

Global Genes RARE-X Names Winners to the Xcelerate RARE Open Science Data Challenge

Global Genes today announced the winners of its inaugural Xcelerate RARE Challenge Open Science Data Challenge at the RARE Advocacy Summit in San Diego. The Xcelerate RARE Challenge brought together academic and industry

South koreaSoult ukpyolsiSan diegoUnited statesKyoungyeul leeChan jeongHeatherc meffordKarmen trzupekBirnur ozbas erdemTechnology collaborations at rocheData products at ambit incSanford healthJude children research hospitalMefford lab at stCharitable foundationAnalytics team

World Rare Disease Day - Global Genes

World Rare Disease Day - Global Genes
globalgenes.org - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from globalgenes.org Daily Mail and Mail on Sunday newspapers.

District of columbiaUnited statesCapitol hillSalt lake cityUniversity of utahCareaboutrare globalgenes rarediseasedayKarmen trzupekMegan oboyleMary morlinoNick ehlyVanessa vogel farleyBroad institutePatient servicesProducts grants programRare disease stats community storiesResearch data governance

Rare Disease Patient Advocates Gather in San Diego for a Week of Events to Connect, Learn, and Empower

Aliso Veijo, California (PRWEB) June 27, 2023 Members of the rare disease community from around the world will gather in San Diego in September for Global

San diegoUnited statesNicole boiceHealth equity forumRare disease diversity coalitionDiseases network foundationHealth equity summitCommunity buildingEverylife foundationGlobal gene advocacy allianceResearch enablementCorporate allianceEquity forumSon rigbyGlobal gene weekHope awards