Stephanie Aston from NZ dies due to Ehlers-Danlos Syndrome.
Is EDS hereditary? It's a genetic disorder most doctors aren't aware of. Like Aston, who died due to EDS, doctors thought she was faking her symptoms.
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Is EDS hereditary? It's a genetic disorder most doctors aren't aware of. Like Aston, who died due to EDS, doctors thought she was faking her symptoms.
EHLERS-DANLOS SYNDROME: After being misdiagnosed and committed to a psychiatric ward, Steph became a tireless advocate for Ehlers-Danlos Syndrome patients before her death at the age of 33, Bevan Hurley writes
EHLERS-DANLOS SYNDROME: After being misdiagnosed and committed to a psychiatric ward, Steph became a tireless advocate for Ehlers-Danlos Syndrome patients before her death at the age of 33, Bevan Hurley writes
A woman has died at the age of just 33 after doctors told her her rare genetic illness was "all in her head".
The woman died after living with the rare illness for five years. Her family said she was a beacon in their community.