Fundraiser launched to help family of Saskatoon boy with rare disease
Emmett Doucette, 4, has been diagnosed with rare terminal condition Sanfilippo Syndrome — just the second known case in Saskatchewan.
Source: leaderpost.com
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Emmett Doucette, 4, has been diagnosed with rare terminal condition Sanfilippo Syndrome — just the second known case in Saskatchewan.
Sask. will pay for a nearly $3 million therapy described as a game-changer for newborns with a rare muscular disorder.