What do we mean by public benefit?
In her latest blog, Dr Nicola Byrne discusses the new National Data Guardian guidance, and how enabling better public benefits evaluations will lead to increased public trust.
Source: gov.uk
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Hundreds of organisations failing to protect patient's 'high-risk' data, says BMJ
Pharmaceutical companies, NHS commissioners and universities have repeatedly breached agreements around sharing patient data, an investigation by The British Medical Journal (BMJ) has revealed.
Source: theiet.org
Hundreds of organisations breached patient data rules, reveals BMJ
Drug firms, private healthcare providers and universities among those that may be failing to protect confidentiality, says report
Source: theguardian.com
Putting Good into Practice: A public dialogue on making public benefit assessments when using health and care data
Putting Good into Practice: a public dialogue on making public benefit assessments when using health and care data Details This report is the first outcome of the Putting Good into Practice project, which is co-funded by the National Data Guardian for Health and Social Care, Understanding Patient Data and UK Research and Innovation’s Sciencewise programme. Previous research has shown that the demonstration of ‘public benefit’ is a crucial condition for most members of the public to support the use of health and care data for purposes beyond their own individual care. However, what exact...
Source: gov.uk