Rare Disease Diversity Coalition Formed To End Racial Disparities In Rare Disease Diagnosis, Research And Treatment
NBA Champion Alonzo Mourning, White House COVID Health Equity Task Force Chair Dr. Marcella Nunez-Smith, Rep. G. K. Butterfield and Leading Rare Disease Experts to Join RDDC on February 23rd for Launch of Diversity Coalition
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WASHINGTON, Feb. 23, 2021 /PRNewswire/ Today, the Black Women s Health Imperative (BWHI) hosts the first public meeting of the Rare Disease Diversity Coalition (RDDC). RDDC seeks to address the pressing challenges faced by marginalized populations and identify potential solutions. Led by BWHI and comprised of a diverse group of healthcare organizations, patient advocacy groups, and industry experts, the RDDC is poised to achieve action in the years to come by:
Rare Disease Diversity Coalition Formed To End Racial Disparities in Rare Disease Diagnosis, Research and Treatment
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Rare Disease Diversity Coalition Formed To End Racial Disparities In Rare Disease Diagnosis, Research And Treatment
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Heart Valve Disease Awareness Day Campaign Celebrates Fifth Anniversary with Focus on Health Disparities
Advocates Continue to Drive Forward Heart Valve Disease Awareness, While Highlighting the Inequities in Risk Factors, Diagnosis, and Treatment Faced by Black Americans
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WASHINGTON, Feb. 16, 2021 /PRNewswire/ On Monday, February 22, more than 90 national organizations and thousands of patient advocates will recognize the fifth anniversary of the annual HVD Awareness Day ( Valve Disease Day ) and the importance of addressing the disproportionate impact heart valve disease (HVD) has on America s Black communities. Valve Disease Day, an awareness day officially acknowledged by the U.S. Department of Health and Human Services, was established in 2017 by the Alliance for Aging Research ( Alliance ) to spotlight the importance of detecting and treating HVD. Many Valve Disease Day awareness efforts this year are focused on hi