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Couple raising funds for 'life-changing' treatment

Couple raising funds for 'life-changing' treatment
donegalnews.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from donegalnews.com Daily Mail and Mail on Sunday newspapers.

Simon Carr , Jennifer Brolly , Chronic Lyme Disease , Tuberous Sclerosis , Lyme Disease , Cross Border Scheme , Chronic Lyme , சிமோன் கார் , நாள்பட்ட லைம் நோய் , கிழங்கு ஸ்க்லரோசிஸ் , லைம் நோய் , நாள்பட்ட லைம் ,

Eliminating People With Down Syndrome Deprives Our Society Of Love


May 24, 2021
On November 8, 2020, Chris Nikic became the first man with Down syndrome to complete an Ironman Triathlon. An Ironman consists of a 2.4-mile open-water swim, a 112-mile bike ride, and a 26.2-mile run a full marathon. It’s an endurance test that less than 0.003 percent of able-bodied Americans can complete.
When asked why Chris became interested in the triathlon, his parents responded, “Ever since Chris was born, the doctors have told us that he’d never walk, that he’d never make friends, that he’d be confined to bed all day, and that his life would be miserable. Chris showed them that those were lies.” ....

United States , City Of Glendale , Chris Nikic , Santa Claus , Glendale Bus , Grace Mehan , Baby Doe , Tuberous Sclerosis , Down Syndrome , Ironman Triathlon , ஒன்றுபட்டது மாநிலங்களில் , நகரம் ஆஃப் க்லெந்‌டேல் , மிச Ou ரி , சாந்தா பிரிவு , குழந்தை டோ , கிழங்கு ஸ்க்லரோசிஸ் , கீழ் நோய்க்குறி , இரும்பு மனிதன் டிரையத்லான் ,

Lanarkshire mum and pals raise £4k for charity close to their hearts


Lanarkshire mum and pals raise £4k for charity close to their hearts
Julie Macfarlan, Clare Maclean and Theresa Jones all walked the Kiltwalk to raise funds for Glasgow Sick Children s hospital
Julie Macfarlan, Clare MacLean and Theresa Jones all walked the Kiltwalk for Julie s daughter, Ellie (Image: Handout)
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Glasgow City , United Kingdom , East Renfrewshire , East Kilbride , South Lanarkshire , Julie Macfarlan , Clare Maclean , Glasgow Sick Children , Tuberous Sclerosis , Lanarkshire Live , App Store , Social Media , Queen Elizabeth University Hospital , Walking And Climbing , Lanarkshire Lifestyle , Lanarkshire Charity , Lanarkshire News , கிளாஸ்கோ நகரம் , ஒன்றுபட்டது கிஂக்டம் , கிழக்கு ரெந்‌ஃப்ரூஶைர் , கிழக்கு கில்‌ப்ரைட் , தெற்கு லானர்க்ஷயர் , தெளிவு மக்லேந் , கிழங்கு ஸ்க்லரோசிஸ் , லானர்க்ஷயர் வாழ , செயலி கடை ,

TS Alliance Advocates for Prioritization of Rare Disease Patients and Caregivers for COVID-19 Vaccines


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SILVER SPRING, Md., March 3, 2021 /PRNewswire/  In partnership with more than 70 advocacy groups, healthcare providers, and biotech companies, the Tuberous Sclerosis Alliance (TS Alliance), an internationally recognized nonprofit that raises awareness and funds to fight the rare genetic disease tuberous sclerosis complex (TSC), recently issued a letter to the National Governors Association that calls on states to immediately prioritize Americans with life-threatening rare diseases in their COVID-19 vaccine rollouts.
In late January, President Biden announced a strategy committed to vaccine distribution for high-risk individuals, specifically those with underlying conditions, including rare diseases. However, the 25-30 million individuals in the United States with rare diseases and their caregivers have yet to be prioritized in many states. The letter has already been submitted to several states and will be presented to every s ....

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