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Arlington Family Raises $400K to Research Cure for Daughter's Disease


March 8, 2021 at 2:30pm
Arlington’s Ellie McGinn and her family recently raised nearly half a million dollars to fund research into Ellie’s rare degenerative brain and spinal cord disease.
Ellie, 12, has lived with LBSL (leukoencephalopathy with brain stem and spinal cord involvement and lactate elevation) for the last 10 years. It affects fewer than 100 people worldwide and currently has no cure. Her family has been actively fundraising for a cure since 2013.
This year’s all-virtual efforts in honor of Rare Disease Day on Feb. 28 drew a total of $400,000 in donations from around the world. Last Wednesday, the McGinn family awarded the money to the Moser Center at the Kennedy Krieger Institute in Baltimore, which is currently developing and testing new drug therapies that could lead to a cure for LBSL. ....

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Should Schools Become Vaccination Sites for Everyone?


Should Schools Become Vaccination Sites for Everyone?
9 min read
Denise Tilley receives her first dose of the COVID-19 vaccine on Feb. 3, 2021 in Anchorage, Alaska. The Anchorage school district is a leading provider of inoculations to community members in the state.Marc Lester for Education Week
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An increasing number of school district leaders are setting up creative partnerships to vaccinate teachers and staff and now some are pressing local health officials to let them expand to the community at large.
Sprawl, gentrification, and cycles of disinvestment have led to markedly different access to drug stores, supermarkets, and medical facilities across the United States, but nearly all communities still have schools, the leaders note. Centrally located and often at walkable distances for most residents, schools have the potential to serve as powerful vaccination hubs. ....

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