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The Big Leap

The Big Leap
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Congress Introduces Legislation Intended to Speed Development of Rare Disease Therapies

Congress Introduces Legislation Intended to Speed Development of Rare Disease Therapies
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Rare Daily Staff
The U.S. House and Senate introduced the Speeding Therapy Access Today Act of 2021, or STAT Act, a bipartisan bill aimed at improving the development of and access to therapies for the rare disease community.
The legislation is a result of more than a year of collaborative effort by rare disease community partners and congressional leaders. Senator Amy Klobuchar (D-Minnesota), Senator Roger Wicker (R-Mississippi), and Representatives Gus Bilirakis (R-Florida) and George Butterfield (D-North Carolina), all of whom serve as co-chairs of the Rare Disease Congressional Caucus, introduced the legislation. ....

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Rare Disease Diversity Coalition Formed To End Racial Disparities In Rare Disease Diagnosis, Research And Treatment

Rare Disease Diversity Coalition Formed To End Racial Disparities In Rare Disease Diagnosis, Research And Treatment
NBA Champion Alonzo Mourning, White House COVID Health Equity Task Force Chair Dr. Marcella Nunez-Smith, Rep. G. K. Butterfield and Leading Rare Disease Experts to Join RDDC on February 23rd for Launch of Diversity Coalition
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WASHINGTON, Feb. 23, 2021 /PRNewswire/ Today, the Black Women s Health Imperative (BWHI) hosts the first public meeting of the Rare Disease Diversity Coalition (RDDC). RDDC seeks to address the pressing challenges faced by marginalized populations and identify potential solutions. Led by BWHI and comprised of a diverse group of healthcare organizations, patient advocacy groups, and industry experts, the RDDC is poised to achieve action in the years to come by: ....

United States , The White House , District Of Columbia , Deric Dube , Beverley Francis Gibson , Laura Weidner , Donna Cryer , Brian Thompson , Saira Sultan , Tammy Boyd , Cassandra Mccullough , Matthewl Watley , Selena Rios , Kim Smith Whitley , Tamar Thompson , Yousra Yusuf , Debbie Drell , Anthonyj Brownlow , Lauren Lee , Linda Goler Blount , Kimberly Haugstad , Amy Hinojosa , Ashley John , Courtney Pieczynski Keplinger , John Burns , Julietk Choi ,

Rare Disease Diversity Coalition Formed To End Racial Disparities in Rare Disease Diagnosis, Research and Treatment

Rare Disease Diversity Coalition Formed To End Racial Disparities in Rare Disease Diagnosis, Research and Treatment
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United States , The White House , District Of Columbia , Deric Dube , Laura Weidner , Donna Cryer , Brian Thompson , Saira Sultan , Tammy Boyd , Cassandra Mccullough , Matthewl Watley , Lesli Foster , Selena Rios , Kim Smith Whitley , Tamar Thompson , Yousra Yusuf , Debbie Drell , Anthonyj Brownlow , Lauren Lee , Linda Goler Blount , Kimberly Haugstad , Amy Hinojosa , Ashley John , Courtney Pieczynski Keplinger , John Burns , Julietk Choi ,

Rare Disease Diversity Coalition Formed To End Racial Disparities In Rare Disease Diagnosis, Research And Treatment

Rare Disease Diversity Coalition Formed To End Racial Disparities In Rare Disease Diagnosis, Research And Treatment
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