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Wicked Local The pandemic canceled last year s Plunge for Elodie, but this year a few determined souls raced into a frigid Morses Pond to raise funds for research on a rare condition called Recessive Dystrophic Epidermolysis Bullosa (EB). Children born with EB suffer constant pain and face shortened lifespans. The Plunge for Elodie is named for Elodie Kubik of Connecticut, whose condition was diagnosed right after her birth on July 15, 2016. Elodie is the daughter of Emily (St. Thomas) Kubik, who grew up on Norwich Road, and David Kubik, They have been joined in their fight against EB by a close-knit group of Emily’s classmates from Wellesley High School s Class of 1999, plus many friends, local businesses and even strangers. ....
Wicked Local Most people have never heard of Recessive Dystrophic Epidermolysis Bullosa (EB), a rare and devastating condition that leaves the children born with it in constant pain and shortens their lives. But in Wellesley, helping to find a cure for EB started as a community cause that has since gone global. At the center of this determination is Elodie Kubik of Connecticut, whose condition was diagnosed immediately after she was born on July 15, 2016 to Dave and Emily (St. Thomas) Kubik. Emily grew up on Norwich Road in Wellesley, where she formed a tight-knit group of friends from the Class of 1999. ....