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Learn the Symptoms of Pulmonary Fibrosis this Rare Disease Day


Learn the Symptoms of Pulmonary Fibrosis this Rare Disease Day
Pinpoint symptoms and take action early by starting conversations with your doctor about pulmonary fibrosis.
Newswise One in 20 people will live with a rare disease at some point in their life . Rare Disease Day on February 28 provides an opportunity to help raise awareness for diseases that are not well known, such as pulmonary fibrosis (PF). For Rare Disease Day, the Pulmonary Fibrosis Foundation (PFF) aims to increase understanding of PF to drive home the importance of early diagnosis.
“The PFF is committed to providing quality disease education for the PF community,” said Dr. Joyce S. Lee, senior medical advisor for research and health care quality at the PFF. “By spreading useful information and providing helpful resources, visibility of PF will continue to grow, leading to improved early detection and quality of life for those living with this devastating disease.” ....

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Pulmonary Fibrosis Foundation Announces Sponsorship by United Therapeutics


Pulmonary Fibrosis Foundation Announces Sponsorship by United Therapeutics
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CHICAGO, Jan. 14, 2021 /PRNewswire/  The
Pulmonary Fibrosis Foundation (PFF), the nation s leading pulmonary fibrosis (PF) education and advocacy organization, has announced United Therapeutics sponsorship of the PFF Registry, a research resource that tracks clinical data, blood samples and patient-reported outcomes from individuals living with PF nationwide. 
United Therapeutics has joined the Pulmonary Fibrosis Foundation (PFF) as a sponsor of the PFF Registry, a research resource that tracks clinical data, blood samples, and patient-reported outcomes from individuals living with pulmonary fibrosis nationwide.
United Therapeutics is a leading biotechnology company with a mission to develop treatments for rare diseases, including pulmonary hypertension (PH) and idiopathic pulmonary fibrosis (IPF). The sponsorship will help researchers working ....

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