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$3.3 million to support Australians living with rare disease


The Hon Greg Hunt MP
Minister for Health and Aged Care
The Morrison Government is providing $3.3 million to support the approximate two million Australians living with a rare disease, providing them with support, raise awareness and create new educational programs.
The new funding will drive the development and delivery of awareness and education resources, and care and support services, for people living with a rare disease, their families and carers, health professionals and the wider population.
Minister for Health and Aged Care, Greg Hunt, said the funding would help to provide new supports to those living with rare diseases.
“Rare diseases are defined as those that affect fewer than 5 in 10,000 people. It’s estimated there are more than 7,000 rare diseases affecting about 8% of the Australian population. Most have genetic origins and many have no known cure,” Minister Hunt said. ....

Greg Hunt , Australian National University , National Strategic Action Plan For Rare Diseases , University Of New South Wales , Childhood Dementia Initiative , Australian Government Department Of Health , National Childhood Dementia Awareness , Morrison Government , Aged Care , National Strategic Action Plan , Rare Diseases , New South Wales , Rare Disease Awareness , Training Project , Voices Australia , Rare Awareness Education Project , Rare Voices Australia , Australian Government Department , கிரெக் வேட்டை , ஆஸ்திரேலிய தேசிய பல்கலைக்கழகம் , தேசிய மூலோபாய நடவடிக்கை திட்டம் க்கு ரேர் நோய்கள் , பல்கலைக்கழகம் ஆஃப் புதியது தெற்கு வேல்ஸ் , குழந்தை பருவம் முதுமை முயற்சி , ஆஸ்திரேலிய அரசு துறை ஆஃப் ஆரோக்கியம் , மோரிசன் அரசு , வயதேறிய பராமரிப்பு ,

Australia invests $3.3M to support people with rare disease

Australia provides $3.3M to support people with rare disease

Greenwich Proclaims Feb. 26 as 'Rare Disease Awareness Day'


Richard Kaufman
For the past year, nearly all of the world’s attention has been on COVID-19, and rightfully so, as a once in a lifetime pandemic has wreaked havoc on the globe.
But on Friday, the Town of Greenwich hoped to shift some of the focus back on some of the lesser known diseases and ailments that families are facing everyday, by declaring Feb. 26 as Rare Disease Awareness Day.
First Selectman Fred Camillo issued a proclamation at Town Hall to John Hopper, President of the Greenwich-based Fibrolamellar Cancer Foundation (FCF), which represents one of the over 7.000 known rare diseases in the world. ....

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